Monika_Miheller
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Hi!
My name is Monika, I am from Sweden and I am new to this group. My son Axel (2,5 y) was diagnosed with MAE soon three weeks ago. My son has four kinds of seizures: Grand Mals, Drops, Absence, Myoclonic.
After the third Grand Mal we started with Valproat and got rid of the Grand Mals and the Myoclonic seizures it seemed. After taking Valproat full dose only for three days we he started taking Lamotrigin also. He has been taking Lamotrigin for 10 days now and will reach full dose in sex more weeks.
A third medicine, Clobazam (Frisium) was also given just a few days after the introduction of Lamotrigin. 1,5 day after taking Frisium he now has his Grand Mals back and today he has had more seizures than since his onset. Frisium is given for Grand Mals so I don´t understand what is going on!
I am starting to panic.
Does anyone have the experience that when introducing a new medicine things get worse and that the medicine later works after reaching full dose?
The whole situation feels devastating right now. He was without Grand Mals for ten days. We thought Valproate was working for his Grand mals and Myoclonic seizures.
The last ten days he has had 1-4 drops and absences daily. Today he has had one Grand Mal, some absences and six drops so far and it is only 3.30 pm here.
Thankful for all information I can get!
Best Regards
Monika
My name is Monika, I am from Sweden and I am new to this group. My son Axel (2,5 y) was diagnosed with MAE soon three weeks ago. My son has four kinds of seizures: Grand Mals, Drops, Absence, Myoclonic.
After the third Grand Mal we started with Valproat and got rid of the Grand Mals and the Myoclonic seizures it seemed. After taking Valproat full dose only for three days we he started taking Lamotrigin also. He has been taking Lamotrigin for 10 days now and will reach full dose in sex more weeks.
A third medicine, Clobazam (Frisium) was also given just a few days after the introduction of Lamotrigin. 1,5 day after taking Frisium he now has his Grand Mals back and today he has had more seizures than since his onset. Frisium is given for Grand Mals so I don´t understand what is going on!
I am starting to panic.
Does anyone have the experience that when introducing a new medicine things get worse and that the medicine later works after reaching full dose?
The whole situation feels devastating right now. He was without Grand Mals for ten days. We thought Valproate was working for his Grand mals and Myoclonic seizures.
The last ten days he has had 1-4 drops and absences daily. Today he has had one Grand Mal, some absences and six drops so far and it is only 3.30 pm here.
Thankful for all information I can get!
Best Regards
Monika