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:woot:
Hi guys. I'm happy I've finally joined an epilepsy forum. My dad encouraged me to join one but it took me months to finally press the join button. So, here I am.
I'm Miguel Marfori. I'm 19 years old, I live in the Philippines and I'm epileptic.
I'm a full-on Filipino (although if you see me in person, you might think I'm half-something. Even I don't know if I'm half-American or something).
I'm an ambivert and my interests are catholic (it means varied, broad. I don't mean the religious meaning)
So let's get to it. I've had my epilepsy/seizures since May 2008.
It happened on a Sunday morning, around the time of 1am. All I remember was after I went to sleep at around 12:45am, I remember waking up in my family's car. My parents were driving me to the hospital. I had no idea what was going on. I remember having a really bad headache and I felt so groggy. It was horrible.
After some procedures, I asked what happened. My parents, my brother and my sister told me I had a seizure that lasted over 5 minutes. They were horrified by the episode I had. My eyes were wide open, my mouth was gargling saliva and my body was twitching violently. This was my first episode.
I stayed in the hospital for 3 days. During that time, I had to take time to comprehend what had just happened to me. My doctor came in and took some tests to analyze my epilepsy.
She classified my epilepsy as rolandic epilepsy.
According to Wikipedia:
Benign rolandic epilepsy is characterized by either simple partial seizures involving the mouth and face or generalized tonic-clonic seizures. There can be one-sided somatosensory manifestations such as tingling (paresthesia) of one side of the tongue, speech arrest (anarthria), gurgling or grunting noises or drooling. Seizures tend to occur more often during the night.[2] Psychic manifestations, auras and automatisms are lacking. The seizure frequency is often low. These children usually have normal intelligence and development. Atypical features however, such as developmental delay or daytime seizures, are common.There is increasing data that a subset of children with atypical EEG or clinical features appear to be at risk for cognitive and behavioral problems, thus in some children the diagnosis may not be as "benign" as previously thought. Most children however appear to do well, typically outgrowing their seizures by adolescence.
She told me this epilepsy only occurs in children and they outgrow. My case was unique because my epilepsy is a rare case. It is a late offset and so far, doctors can't explain why my epilepsy came in late. But what they can say is I may have caused it myself; I've had a few head accidents when I was a kid.
So there I go, after 3 days I got out of the hospital. My doctor told me before I left that I can get off the medicine after 2 years. I thought it was the end of my epilepsy.
But I switched doctors after 2 years because the second doctor (my current doctor and my mom's former classmate in college) informed me my epilepsy will stay with me until I die. He took some tests on me and he concluded my epilepsy is a really rare case.
I've lived with my epilepsy for almost 3 years now. I've had on record, 34 seizures. All of them only occur during sleep. I usually know when I've had a seizure when I feel a massive headache after waking up. There are times that I'm conscious and weirdly enough, I try to get up my bed even though I know I have a very bad headache. But there are times I don't feel the seizures even if my family tells me I had.
My second doctor told me not to: get stressed too much, sleep too late, drink alcohol or smoke, and over-fatigue. Majority of my seizures have been caused by stress, sleep deprivation and over-fatigue. I don't drink alcohol or smoke.
I'm not prevented from eating certain kinds of food but I usually get seizures if I stuff myself too much or eat and then sleep right away. I've also caused seizures myself by thinking a certain food will cause. I influence my seizures too.
But other than that, I've lived a pretty good life so far. Although I don't know if there will ever be a cure for my epilepsy, I hope that some day I can get cured of this and for the rest of us as well. But I'm not losing hope. :rock:
So that's my story guys. I joined this forum because I want to know people who have epilepsy and how they've coped with it. I also want to help as well.
I hope I have a good time here. So let's rock!
Hi guys. I'm happy I've finally joined an epilepsy forum. My dad encouraged me to join one but it took me months to finally press the join button. So, here I am.
I'm Miguel Marfori. I'm 19 years old, I live in the Philippines and I'm epileptic.
I'm a full-on Filipino (although if you see me in person, you might think I'm half-something. Even I don't know if I'm half-American or something).
I'm an ambivert and my interests are catholic (it means varied, broad. I don't mean the religious meaning)
So let's get to it. I've had my epilepsy/seizures since May 2008.
It happened on a Sunday morning, around the time of 1am. All I remember was after I went to sleep at around 12:45am, I remember waking up in my family's car. My parents were driving me to the hospital. I had no idea what was going on. I remember having a really bad headache and I felt so groggy. It was horrible.
After some procedures, I asked what happened. My parents, my brother and my sister told me I had a seizure that lasted over 5 minutes. They were horrified by the episode I had. My eyes were wide open, my mouth was gargling saliva and my body was twitching violently. This was my first episode.
I stayed in the hospital for 3 days. During that time, I had to take time to comprehend what had just happened to me. My doctor came in and took some tests to analyze my epilepsy.
She classified my epilepsy as rolandic epilepsy.
According to Wikipedia:
Benign rolandic epilepsy is characterized by either simple partial seizures involving the mouth and face or generalized tonic-clonic seizures. There can be one-sided somatosensory manifestations such as tingling (paresthesia) of one side of the tongue, speech arrest (anarthria), gurgling or grunting noises or drooling. Seizures tend to occur more often during the night.[2] Psychic manifestations, auras and automatisms are lacking. The seizure frequency is often low. These children usually have normal intelligence and development. Atypical features however, such as developmental delay or daytime seizures, are common.There is increasing data that a subset of children with atypical EEG or clinical features appear to be at risk for cognitive and behavioral problems, thus in some children the diagnosis may not be as "benign" as previously thought. Most children however appear to do well, typically outgrowing their seizures by adolescence.
She told me this epilepsy only occurs in children and they outgrow. My case was unique because my epilepsy is a rare case. It is a late offset and so far, doctors can't explain why my epilepsy came in late. But what they can say is I may have caused it myself; I've had a few head accidents when I was a kid.
So there I go, after 3 days I got out of the hospital. My doctor told me before I left that I can get off the medicine after 2 years. I thought it was the end of my epilepsy.
But I switched doctors after 2 years because the second doctor (my current doctor and my mom's former classmate in college) informed me my epilepsy will stay with me until I die. He took some tests on me and he concluded my epilepsy is a really rare case.
I've lived with my epilepsy for almost 3 years now. I've had on record, 34 seizures. All of them only occur during sleep. I usually know when I've had a seizure when I feel a massive headache after waking up. There are times that I'm conscious and weirdly enough, I try to get up my bed even though I know I have a very bad headache. But there are times I don't feel the seizures even if my family tells me I had.
My second doctor told me not to: get stressed too much, sleep too late, drink alcohol or smoke, and over-fatigue. Majority of my seizures have been caused by stress, sleep deprivation and over-fatigue. I don't drink alcohol or smoke.
I'm not prevented from eating certain kinds of food but I usually get seizures if I stuff myself too much or eat and then sleep right away. I've also caused seizures myself by thinking a certain food will cause. I influence my seizures too.
But other than that, I've lived a pretty good life so far. Although I don't know if there will ever be a cure for my epilepsy, I hope that some day I can get cured of this and for the rest of us as well. But I'm not losing hope. :rock:
So that's my story guys. I joined this forum because I want to know people who have epilepsy and how they've coped with it. I also want to help as well.
I hope I have a good time here. So let's rock!
thanks for the reply