EEG Sleep study

Heavy Kevy

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So here’s the weird part. I feel great.
Up until 3am woke up at noon and I’ve been going 90mph all day.
With an increase of SZ in the last few months plus this experience. I shouldn’t feel this good….basically manic.
Thanks. I always appreciate the positive reception here. 🤗
 

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Sabbo

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I just saw my neurologist yesterday, & he wants to have another study done--but in this time in the hospital--as long as insurance is okay with it. He was saying that the 48-hour EEG showed constant seizure-type activity in that area of my brain where there is scar tissue.
 

Porkette

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Hi Sabbo,

I wish you the best of luck with the study and EEG. I had the same thing done and I had to cut back on the AED's before
the test and as soon as I had enough seizures to please the Dr. I could go home. If you know of any foods or beverages
that can trigger seizures be sure to eat and drink some of them. I had to drink diet soda and then the seizures fired up good.
Wishing You only the Best and May God Bless You,

Sue
 

Heavy Kevy

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Hopefully it’s as quick as needed. Good for you! It’s hard continuously keeping up with Dr’s, meds, insurance, etc…
👊
 

Sabbo

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I agree about it being as soon as possible. My neurologist said he that since Xcopri is the last AED out there for the types of seizures I get & even it isn't fully controlling them--it does in around 25% of the patients at this dose--(200MG/day) surgery may be another option for me. (That will also depend on insurance being willing to pay).
They've told me that once everything for this EEG is set up, I won't eat my meds the night before or the morning that I check in. He also told me that although they schedule it as a 5-day hospital stay, they will send me home sooner if they get all of the info they need before then.
 

Porkette

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Hi Sabbo,

If you decide on surgery get it in writing from your insurance co. that everything is approved and covered 100%. That is what
I did each time I had brain surgery and then 1 time they tried to come back on me and charge me for anthesia but I had the letter
so they didn't get the extra money they were going after. Wishing you the best of luck and May God Bless You,

Sue
 
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