Electrographic seizures

[chmmr]

I'm still trying to do some research and figure out the scoop with my daughter. I have been trying to look into info on electrographic seizures-most of what i have found relates to critically ill people and or comatose people.

Is it possible to have electrographic activity in a "normal" brain? Or is it a for sure sign of E even though there is no clinical accompaniment?

What constitiutes electrographic activity (our most recent EEG says "Broad based sharp waves are seen almost continuously at T6 with some involvement of P4 and C4 with no clinical accompaniment)
This recording continues to be abnormal showing epileptiform discharges in the way of broad based sharp waves frequently at T6 (posterior right temporal), and infrequently at P4 and C4 (which are the posterior parietal and right paracentral locations).) Would that be electrographic since it's "almost continuous" ( i presume it was almost continuous only during sleep or it would be more of a concern?)

 

[Nakamova]

Some brainwave patterns associated with epilepsy can be present in someone with epilepsy even without a seizure occurring -- that may be the case for your daughter. They can indicate that someone is at risk for having a seizure. That's my situation -- I've never had a seizure during an EEG, but my readouts show a "between seizure" pattern that is associated with epilepsy.

There can be false positives and false negatives with EEGs, so there's also a chance that it's the former with your daughter.

What does her neurologist say?

 

[chmmr]

Her neuro is a bit of a twit to be honest and i don't get to talk to her directly nor does she examine my dd (she saw her when she was just over a year old and not since then (she talks to our pediatrician which is just fine with me)
Our ped originally wanted to medicate her when she saw how bad it was, but whatever the neuro said changed her mind and now they are "waiting for her to regress or to present clinically" before treating. My ped has warned me about seizures longer than 5 minutes, is going to give me rescue drugs (so we can continue to go skiing, go on vacations etc without worrying about being too far from our docs to get treatment in a timely manner), and will give me clobazam for "when she is sick if we think we need it for a few days".
It's all so confusing because obviously no one wants to see their child regress or have a big seizure, and i worry if it worsened to that degree, how much more can it worsen and will we know (with it being posterior temporal lobe and her being preschool age). My ped has said a pattern of small events, or a large event would likely push her to put her on meds. They never mentioned "electrographic"-that was my googling


**almost forgot-we have gone from not seeing our pediatrician for any regular exams to going in every two months for a full neuro exam to make sure there are no changes (we go in again next week)

 

[Nakamova]

That's great that your pediatrician is at least paying close attention and will provide you with the rescue meds. It must feel terrible to be in this limbo -- praying that nothing will happen, and vigilant in case it does.