Hello everyone,
I am new here....I am looking for information on myoclonic seizures. My daughter, Ellie, was diagnosed with myoclonic seizures at 9 months old. She was initially started on Topamax (the seizures remained-about 8/day), we then added Keppra. She was maxed out on both meds without any control. We are now weaning the Keppra, have also started Klonapin, Vit B6. She has had 2 eegs, which showed multifocal myoclonus with a normal background, a MRI as well as blood, urine, and a eye exam. So far, all results are normal. We are currently waiting to find results on the DNA seizure panel sent to Boston, Mass. Unfortunately, the seizures continue. However, developmentally she is on track and is a feisty one year old now. I can't describe the fear....it feels as though I could reach out and touch it. I am interested in the vitamin and minerals, however her neurogist who is the director of a Pediatric Epilepsy at a major Children's Hospital, did not seem particularly interested in that route. Currently the plan is to try to bridge her to Depakote. Any thoughts, suggestions, or ideas, I am open. Looking forward to getting to know all of you better. I have been looking for support lots of places.
Thank you
I am new here....I am looking for information on myoclonic seizures. My daughter, Ellie, was diagnosed with myoclonic seizures at 9 months old. She was initially started on Topamax (the seizures remained-about 8/day), we then added Keppra. She was maxed out on both meds without any control. We are now weaning the Keppra, have also started Klonapin, Vit B6. She has had 2 eegs, which showed multifocal myoclonus with a normal background, a MRI as well as blood, urine, and a eye exam. So far, all results are normal. We are currently waiting to find results on the DNA seizure panel sent to Boston, Mass. Unfortunately, the seizures continue. However, developmentally she is on track and is a feisty one year old now. I can't describe the fear....it feels as though I could reach out and touch it. I am interested in the vitamin and minerals, however her neurogist who is the director of a Pediatric Epilepsy at a major Children's Hospital, did not seem particularly interested in that route. Currently the plan is to try to bridge her to Depakote. Any thoughts, suggestions, or ideas, I am open. Looking forward to getting to know all of you better. I have been looking for support lots of places.
Thank you