enduring problems with interactions?

[petero]

has anyone else had enduring issues with excessive interaction during post-ictal or a cluster seizure period?

frankly I'm not sure what it was, I woke up in extreme pain (sleep seizure I guess) got taken to the ER.
since then it has seemed like people have been tracking me, following me, programming my thoughts and actions... sometimes worse than others

I thought it might be something that would die off as the seizure period ceded. but it hasn't quite

and I've come to realize I think it stems from keppra (which f'd me up in the first place) and
TOO much post-ictal interaction, or maybe it was a cluster seizure period, I'm not sure
it seems that maybe even slight things I may have heard in passing at the ER may have resonated with me, much less that which was being addressed to me directly
and it keeps resonating and circling around and around
and it feels like something regarding these things is supposed to 'happen' to resolve some sort of thing for me
I've been very frustrated since that time in December, and it doesn't go away

I'm wondering if anyone else has had bad experiences with way too much interaction while still 'out' post-ictal, or during simple seizures that were ongoing... frankly I'm not sure what they were
a counsellor for that system later told me I had a psychotic seizure, but explained no further and didn't seem competent to do so
if anything this 'psychotic' whatever was precipitated by these interactions which were never welcome nor frankly understood, and I think this is at root of their persisting nature.
I'm still ill by these things in my head
any similar experiences?

 

[Endless]

Petox,

I'm so sorry you are going through this. It's incredibly difficult.

Can you give more details about what you mean by "interaction?" You mean your medications? With other people? With seizures?

It might be a good idea to get on the phone and call your neurologist NOW. He's sure to have an on-call line you'll be connected with. He may want to adjust your medications, refer you for more assistance, or send you back to the ER.

Please let us know how you are doing today, okay?

I'm wondering if anyone else has had bad experiences with way too much interaction while still 'out' post-ictal, or during simple seizures that were ongoing... frankly I'm not sure what they were
a counsellor for that system later told me I had a psychotic seizure, but explained no further and didn't seem competent to do so
if anything this 'psychotic' whatever was precipitated by these interactions which were never welcome nor frankly understood, and I think this is at root of their persisting nature.
I'm still ill by these things in my head
any similar experiences?

P.S. I can totally relate to the confusion after a cluster of seizures. Sometimes I feel like I can barely function, and just stay home because anything else is just too much. Everything I do during those times goes completely haywire.

 

[petero]

to clarify (drug interactions? I don't know. i was administered morphine for pain. so on to of my already 8 dimensions of reality it was compounded by another 8 dimensions)
but I meant interactions with people- things being asked (well beyond the "do you know where you are... what year is it?" type) that seemed psychologically probing and invasive

and as hard as the "year" type are hard to answer these others were much worse

 

[bazpa]

Are you still taking Keppra? I was not able to tolerate Keppra at all. It got so bad that I could hardly get off the couch, and did not want to wake up in the morning. If you are still taking it-you need to talk to you doctor ASAP. We all seem to react differently to these drugs. I know for sure that I never want to feel that way again. Within a couple of days of starting the new medication, and weening off the keppra I was already feeling better. You seem to be having such a awful time-me too. I hope you start feeling better soon.

 

[petero]

I am no longe taking keppra - I was weaned off of it a few weeks after I was put on it - and it was while being on the keppra when I had this very bad seizure period that wound me up in the ER
so I'm pretty sure I know what you mean

 

[mel239]

I Had to nearly isolate myself for 3 yrs trying to deal with paranoia and hallucinations and all the craziness of left tle-but even though I am far from controlled,I am becoming normal again and adjusting-I just avoid people and confusion and crowds and noise from 2 sources at once.It takes time,but I feel better in my head and I hope you do to.I take nothing but my aeds

 

[petero]

I Had to nearly isolate myself for 3 yrs trying to deal with paranoia and hallucinations and all the craziness of left tle-but even though I am far from controlled,I am becoming normal again and adjusting-I just avoid people and confusion and crowds and noise from 2 sources at once.It takes time,but I feel better in my head and I hope you do to.I take nothing but my aeds

people, confusion, crowds, noises... sounds a bit like what I go through

 

[mel239]

At first,I kept trying to plow through with my normal life-thinking the aeds would handle the problems and it would be "business as usual" Took seeing a psychiatrist ONE TIME and in 15 minutes he told me I would never be normal or have a normal life whether my seizures were controlled or not so I better get with the program. I have noticed a whole new feeling of normalcy once I eliminated people,crowds confusion noise and too many sources of chaos at a time..WOW its remarkable.The seizures and hallucinations and memory loss even fade to the background

 

[petero]

At first,I kept trying to plow through with my normal life-thinking the aeds would handle the problems and it would be "business as usual" Took seeing a psychiatrist ONE TIME and in 15 minutes he told me I would never be normal or have a normal life whether my seizures were controlled or not so I better get with the program. I have noticed a whole new feeling of normalcy once I eliminated people,crowds confusion noise and too many sources of chaos at a time..WOW its remarkable.The seizures and hallucinations and memory loss even fade to the background

well I guess that's bittersweet news
not that there is any "normal"
but the message may have just been to do what you need to do regardless of anything else
and that once we have seizures, needs change, and that needs to be realized

 

[mel239]

well I feel wonderful and really able to cope now and I dont need those outside distractions anyway my focus needs to be on me and my family and perhaps a Greater Power was on hand to lead me to that understanding all along