Cannot stand it anymore. DOES ANYONE ELSE HAVE THESE ???? I get them about once a month....2 or 3 a day for 2 or 3 day. Had MRI...no problems...eeg abnormal...2 year wait for neurologist..referral made April 2014...Kingston Ontario. On Valproic Acid 2 in a.m. 3 at night. These "abdominal seizures" leave me before and after in fear, anxiety, nauseous and some stomach pain after. What is even worse....de-realiation and de-personalization.....I'm at my wits end....please share HELP !!!!!
Epi-Gastric Rising Seizures
- Thread starter Lynda
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I don't think we have met yet, so welcome to CWE!
Waiting until 2016 for an appointment is too long; I hope you have asked your name to be put on a wait list in the event of a cancellation. In the meantime I would recommend going to the ER during the day in hopes of there being a neurologist on call. Have you tried other medications since April 2014, or is valproic acid the only one? Could be that the dose is not high enough or that it is not the right medication for you and/or this type of seizure. Who prescribed the valproic acid by the way, since you haven't seen a neurologist yet?
Waiting until 2016 for an appointment is too long; I hope you have asked your name to be put on a wait list in the event of a cancellation. In the meantime I would recommend going to the ER during the day in hopes of there being a neurologist on call. Have you tried other medications since April 2014, or is valproic acid the only one? Could be that the dose is not high enough or that it is not the right medication for you and/or this type of seizure. Who prescribed the valproic acid by the way, since you haven't seen a neurologist yet?
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:agree:
The valproate doesn't seem to be controlling your partial seizures, so either the dose needs to change or the medication does. There are a lot of other AEDs out there, so perhaps you can see a sympathetic neuro at the ER who can help you out. I think Tegretol is often a first-line med for partials, so that might be one to try. Do you have a GP you can get in to see sooner? Perhaps he or she could help as well.
The valproate doesn't seem to be controlling your partial seizures, so either the dose needs to change or the medication does. There are a lot of other AEDs out there, so perhaps you can see a sympathetic neuro at the ER who can help you out. I think Tegretol is often a first-line med for partials, so that might be one to try. Do you have a GP you can get in to see sooner? Perhaps he or she could help as well.
epigastric rising
Thank you mastergen and all for your info. Kingston is the only hospital with a neurologist in south eastern ontario. Luckily i do not have full seizures. I will discuss with my gp re the alternative seizure med. Do either of you understand this particular type of seizure.....it is nasty and very scary
Thank you mastergen and all for your info. Kingston is the only hospital with a neurologist in south eastern ontario. Luckily i do not have full seizures. I will discuss with my gp re the alternative seizure med. Do either of you understand this particular type of seizure.....it is nasty and very scary
Hey, a fellow Canadian 
There aren't many of us here, but there are a few.
I am not familiar with your seizure type, and they do sound scary. Even though they may be considered partial seizures, ideally you want to get better control of them sooner rather than later. Are you able to travel to a neurologist (or ideally an epilepsy center) outside of south-east Ontario? If so, insist to your GP that you are not willing to wait until 2016 to see a neurologist and that you would like your GP to put in a referral to wherever this next neurology center may be.
There aren't many of us here, but there are a few.I am not familiar with your seizure type, and they do sound scary. Even though they may be considered partial seizures, ideally you want to get better control of them sooner rather than later. Are you able to travel to a neurologist (or ideally an epilepsy center) outside of south-east Ontario? If so, insist to your GP that you are not willing to wait until 2016 to see a neurologist and that you would like your GP to put in a referral to wherever this next neurology center may be.
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The symptoms you describe (epigastric rising, abdominal discomfort, nausea, anxiety, deja vu, jamais vu, fear, confusion, etc.) are associated with seizures that originate in the mesial temporal lobe. Unfortunately they tend to last longer than some other temporal lobe seizures. 
On the "plus" side, it's rare for them to generalize to convulsive seizures. I hope you can get relief soon.
On the "plus" side, it's rare for them to generalize to convulsive seizures. I hope you can get relief soon.