epi - rob says hi

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epi - rob

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My names rob, I'm from the uk and suffer from sps and cps seizures. HAve suffered from this for 15 years now with no real improvment in seizure control. my seizures vary from 1 to 3 a week to 5+ a week. I have been on nearly all of the AED's available with out much success. I am now a monotherapy and take a drug called Lamictal ( Lamotrigine) I have recently this year taken keppra with no success and Phenytoin which actually brought on Blackouts. So I have stopped that and the blackouts have stopped.

I frequently visit the NSE epilepsy forum in the uk and this is where I clicked on Bernards link to be taken to here. I am interested now in trying an alternative way of trying to control my epilepsy as an add on therapy with my present medication. I am fed up of trying diferent AED's and feel that the positve way forward is too try something diferent. I will look through the forum for any suggestions and if anyone would like to contact me for a chat then great.

Looking forward to posting and getting involved with you all. Have a good day.:banana:
 
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Hi epi rob, welcome to the forum. :hello:

Always nice to see a familiar face (so to speak). :)

Check the chart linked in my signature for a bunch of info on alternative treatments. You can try experimenting with diets, vitamins (minerals, Omega-3, etc.) and neurobehavioral therapy (with the book [ame]http://www.amazon.com/exec/obidos/redirect?tag=projectmana0a-20&path=tg/detail/-/0802774652/ref=ase_projectmana0a-20?v=glance&s=books[/ame]) pretty much on your own (though doctor supervision would be optimal - not sure how practical that is in the UK).
 
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Hey Rob, really glad you joined us.
I am on the same journey as you are for my daughter. There is a ton of info here to digest. Make yourself comfy and chime in when and where you wish.
 
:hello: Rob!

Glad to see you over here too!
:D

Grab a box of :pop: and make
yourself a home here too and
feel free to browse around!
 
Aye guys and galls, thanks for the welcome. I have only browsed briefly around here but it looks really cool:clap: I'm just going to write some of the alrernative therapies available and will put this in a letter to my neuro:bigsmile:
 
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