- Messages
- 7,648
- Reaction score
- 997
- Points
- 278
With props to Charles Fox's Special Education Law Blog (where I discovered this), the Centers for Disease Control and Prevention (CDC) has published an epilepsy toolkit for parents of teens who have epilepsy:
Click the epilepsy toolkit link above to access the materials (it's all free).CDC said:Parents know that the transition from childhood into adulthood often includes emotional, psychological, and social challenges for any teen. But a teen with epilepsy, especially when newly diagnosed, may have additional anxiety and confusion due to epilepsy's complexity and unpredictability. When other people (including teachers, other children, and other parents) do not understand or are afraid of this teen who may appear different, a communication barrier can develop, creating further misunderstanding, isolation, and discouragement. Parents can play an important role in preventing this. When their children with epilepsy become teenagers, they can encourage and assist them in taking responsibility for themselves, while at the same time helping them accept the limitations on their freedom and choices that may be necessitated by the seizure disorder. The materials in this toolkit are designed to support this effort.