Epileptic jerks or non-epileptic jerks!!?? Please help

[eminempink]

Hey everyone...

Over three yrs ago I was diagnosed with epilepsy, in April 2012 I started getting unusual jerks, obviously I put it down to the epilepsy but my neurologist said that it was non epileptic (nes).

I found this difficult to accept and understand, but carried on as normal as possible.
Well here I am almost. A year. Later and still getting them!! Only difference is that they're worse and for frequent. My neurologist recommended cbt or some form of therapy. However I don't understand how these jerks can be nes bcoz I get them everyday! No matter what I'm doing or how much sleep I get!

I'm fed up its so frustrating plus the jerks hurt my wrist and other muscles where my body is spasaming

 

[Chaz1]

warm welcome to CWE eminempink

Do not underestimate CBT BUT...

BUT, 3 years later you need some answers and some peace..

http://www.hopkinsmedicine.org/neur...pilepsy/seizures/types/myoclinc-seizures.html

has your neurologist done an EEG?

 

[Nakamova]

Hi eminempink,

Sounds like your neurologist is the "jerk". He should be able to explain why he's so sure they're non-epileptic in origin, and why he thinks CBT will help.

In the meantime, you might want to look for another neurologist, and consider adding a magnesium supplement to see if it helps. (Magnesium plays a role in preventing muscle cramping, jerking, spasms, twitches, etc. It can even help the heart muscle relax, and so is sometimes used to help lower high blood pressure).