Rhea
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Little Ethan, who is now 9 months, and not so little- is still fighting. Because of the ACTH, he weighs 29 lbs. Even his rolls have rolls!!! No, it's not cute, he's beyond pudgy and people are really MORONS about it. But, anyway, I digress.
Next week, he will start weaning off ACTH. His last 2 eeg's show no spasms and very little seizure activity. WOOHOOOO:rock: He seems a little happier, and more smiles. He definitely is observing his world. Dr. says he sees no evidence of retardation, Ethan SHOULD be able to learn. The very low muscle tone may be a hindrance, but we're already working with some exercises and therapy to strengthen these. He is vocal with different noises for different reasons. He will "growl" if he likes you. He will "grunt" if he wants more food. a variety of different sounds and expressions. We still have a long way to go, but not as far as before!!!
Next week, he will start weaning off ACTH. His last 2 eeg's show no spasms and very little seizure activity. WOOHOOOO:rock: He seems a little happier, and more smiles. He definitely is observing his world. Dr. says he sees no evidence of retardation, Ethan SHOULD be able to learn. The very low muscle tone may be a hindrance, but we're already working with some exercises and therapy to strengthen these. He is vocal with different noises for different reasons. He will "growl" if he likes you. He will "grunt" if he wants more food. a variety of different sounds and expressions. We still have a long way to go, but not as far as before!!!