Hi Everyone, I just wanted to let you know that I posted as seetseet since I have been here, and I forgot my password, but also successfully locked myself out of my email- fail.
I just need some ideas /advice about family support- perhaps gaining it and trying to get them to understand. I realise it is a long shot.
I might have let you guys know that we will probably live in different apartments but stay a couple or possibly separate with my husband- long story- but it is because of his PTSD- it is affecting all of us.
I do not feel as though he is leaving me or vice versa.
But of course 50% of our friends and family think he is leaving me when he should be taking care of me. The other 50% think that I don't want to be a mother and I am bailing on my kids with the boys living with him (they are 5&7 and we realise that for them to see a seizure is like seeing their mother die, which has also been supported by people who work with children- that is why both of us don't agree with this "they'll get used to it" theory)
So, with my blurb done with, the advice I require is what and how I should go about my immediate family- well my father to be exact.
Ever since I have told him our "plan" he has been saying that my husband should get professional help and that he can and should "get used to it".
Ok, that is a point but he as a counselor should understand PTSD especially since his partner has it. It isn't something that is curable.
Currently I am living with my two boys at my father's place as we are waiting for my husband to sell our house (in a different country). The idea about us living here till he arrives, is so my father can be here for the kids and me if something happens. Which in theory should happen because he has been saying what an "everyday" epilepsy is and anyone can handle it.
So it started on Friday afternoon and went all Saturday to Sunday morning.
I had this awful "too much coffee" feeling- this constant fear, everything was scattered - I had a plan of what I needed to do for Saturday, with my boys and my dad driving (it was go to optometrist to pick up my glasses, have my mobile phone checked in the.same shopping centre and go to my brother's place for lunch).
The whole day seemed like the biggest mission because I was scared, it felt like watching a movie, and I was constantly holding onto things so I could have the sense of "physically" feeling something to keep me here. I have had it before, but it wasn't for this long and plus I was at home and I had the safety of sitting on a couch so just incase I has a proper seizure I wouldn't smash myself. So the whole day was awful.
I tried to tell my dad twice what I was feeling (I have told him a number of times that it isn't just tonic clonic seizures that exist).
I will give him that I didn't say that this might be due to epilepsy.
The first time I told him was in the car, and I told him I felt awful, he asked how (as im emotionally or physically) I said Physically like when you have had too much coffee- and he went into a blurb about the one time he had coffee and that's why he only drinks one a day. I was freaking out, and I told him I don't drink coffee and haven't in almost a year, and that was it.
The Second time that day, he was sitting next to me, and I told him that I was reeeally out of it. He didn't ask anything, he actually stood up straight away and sat in another seat.
Why?
What do I do?
Who do I tell?
Or is just normal even coming from a parent who is is a counsellor- and who thinks epilepsy is a simple thing?
I just need some ideas /advice about family support- perhaps gaining it and trying to get them to understand. I realise it is a long shot.
I might have let you guys know that we will probably live in different apartments but stay a couple or possibly separate with my husband- long story- but it is because of his PTSD- it is affecting all of us.
I do not feel as though he is leaving me or vice versa.
But of course 50% of our friends and family think he is leaving me when he should be taking care of me. The other 50% think that I don't want to be a mother and I am bailing on my kids with the boys living with him (they are 5&7 and we realise that for them to see a seizure is like seeing their mother die, which has also been supported by people who work with children- that is why both of us don't agree with this "they'll get used to it" theory)
So, with my blurb done with, the advice I require is what and how I should go about my immediate family- well my father to be exact.
Ever since I have told him our "plan" he has been saying that my husband should get professional help and that he can and should "get used to it".
Ok, that is a point but he as a counselor should understand PTSD especially since his partner has it. It isn't something that is curable.
Currently I am living with my two boys at my father's place as we are waiting for my husband to sell our house (in a different country). The idea about us living here till he arrives, is so my father can be here for the kids and me if something happens. Which in theory should happen because he has been saying what an "everyday" epilepsy is and anyone can handle it.
So it started on Friday afternoon and went all Saturday to Sunday morning.
I had this awful "too much coffee" feeling- this constant fear, everything was scattered - I had a plan of what I needed to do for Saturday, with my boys and my dad driving (it was go to optometrist to pick up my glasses, have my mobile phone checked in the.same shopping centre and go to my brother's place for lunch).
The whole day seemed like the biggest mission because I was scared, it felt like watching a movie, and I was constantly holding onto things so I could have the sense of "physically" feeling something to keep me here. I have had it before, but it wasn't for this long and plus I was at home and I had the safety of sitting on a couch so just incase I has a proper seizure I wouldn't smash myself. So the whole day was awful.
I tried to tell my dad twice what I was feeling (I have told him a number of times that it isn't just tonic clonic seizures that exist).
I will give him that I didn't say that this might be due to epilepsy.
The first time I told him was in the car, and I told him I felt awful, he asked how (as im emotionally or physically) I said Physically like when you have had too much coffee- and he went into a blurb about the one time he had coffee and that's why he only drinks one a day. I was freaking out, and I told him I don't drink coffee and haven't in almost a year, and that was it.
The Second time that day, he was sitting next to me, and I told him that I was reeeally out of it. He didn't ask anything, he actually stood up straight away and sat in another seat.
Why?
What do I do?
Who do I tell?
Or is just normal even coming from a parent who is is a counsellor- and who thinks epilepsy is a simple thing?