feeling onset auras... a week prior to meltdown?

[petero]

going back through my epilepsy.com app seizure diary I noticed something odd. A while ago I had stopped entering info I thought was seizure related and tried a more consistent approach to entering data: diet, caffeine, sleep... (but I have not been consistent. shame on me.)
but about a little over a week ago now(???) who knows- I try to "forget" them for a while, grant myself a reprieve, immediately after (for a few days, however long it takes) I have a bad seizure episode.

again I recall many hours into the experience and have no clarity as to the beginning, how it starts, how I really get to the hospital etc.
this time I wound up in a psych hospital for about 5 days and got haloperidol and diphenhistamine added to my Rx intake daily.
psycho, Tourette's, yadda, idk - I recall partly getting very loud and demanding.
anyway I'm pretty sure these pills are really helping. it was good to see again I can cold-turkey smoking pot too with zero circumstance.

but to the point, I am reviewing my data (diary, artwork output, grow cycles, anything that could show corellation) and saw a lot of diary entries with a lot of curious ideation a week prior to and up to the day, well, the day my phone was taken from me because I had to don the nuthouse scrubs I guess. The time that the legal rights of my phone probably surpass my own, not to mention the aptitude and processing capabilities.
lol
hilarious :|

anyway
a lot of week-prior ""they" are doing such and such to me" posts in my diary, ideations regarding some sort of master plan involving me- idk what quite, but it involves overall I guess my at the time limited-capability brain having had an extraordinarily difficult time still processing some seizure-related events over a year ago.

so I have auras a week prior involving this "they" entity at the hospital, and then I have meltdown

long story short, are week-long auras common?
week-long preludes sound a little long even for Richard Wagner.

but there it is in my diary

in your opinion would variable aura periods be more demonstrable of a ... well, how can I put it...
have you ever teased yourself up to just-prior-to orgasm for a while and then finally had a mindblowing orgasm?
could same go for aura/foreplay seizure/orgasm? the longer the aura-play the greater the seizure-gasm?

and if by that you you're interpreting my description and comparison to imply that my seizures feel like orgasms, please feel free to slap yourself because that is hardly what I'm saying

 

[petero]

I'm not really sure what I'm asking.
I'm still not sure I've ever had a positive EEG, but this last time in the hospital they did use the "tick tick tick tick tick tick tick" noise machine on me. I'm not sure what the results were, but I remember the warning about the noise from the hospital staff (the faceless-scrub-blur entity), the big tubular machine and the noise...

auras can be seizures
seizures can be long and variable
seizures can involve many things...

sometimes I question what IS real
8-/
it's all just brain impulses anyway

on a positive note, I have met a great woman and our relationship is slowly developing - but she has met my best friend (who is also an ex-gf (my personal Seinfeld/Elaine dichotomy for those unaware)) and they both had positive feedback about the other,
...AND I got to skinny-dip and get in some naked sunbathing yesterday at my friend's mom's house! go vitamin D woop woop!
yeah I tactfully skinnydipped in front of my best friend/ex-...
I needed the pool time
gimme a break
I felt I needed a spotter hanging around and it's all old territory anyway.. my naked body

another positive note: I saved her mom's dog from drowning!

I have been feeling way way better and more stable since getting on the new meds.

 

[Rae1889]

Hmmm. I think Im confused. Im not sure what you are asking either...

If you ask your hospital for your EEG records (they can put any video recordings on a cd for you as well) along with the hand written analysis then you can see for sure whether you had a positive EEG or not.

 

[petero]

another question-
related and unrelated

while I was in the hospital extended stay (www.Timberlawn.com) there was a patient there who was female and had what I felt may have a problem related to my problem.
she had a Tourette's thing going on in waves, constant singing, very stubborn at times...
something struck me as "true" about her to my own psyche and recollection relating to my own "thing" I think I may experience during my seizure periods. finding out about what my new Rx haloperidol does helps to confirm this sense.

anyway, she and I exchanged contact info during our stay together on the co-ed floor, and prior to her being straightjacketed off to the more treatment-intensive stay-in facility in the area: a state mental hospital

I sent an email, skipped the Facebook, and then got in touch with her mom at the phone number she provided for her mom.

Due to the connection I felt between what we were both experiencing I felt it like a good idea to keep in touch.

I presented myself clearly and competently-minded to her mom (they sound like they're from Rwanda maybe) while saying I felt a bond between myself and her daughter's condition to try to make it clear that people go in and out of mental states, to demonstrate a healing from a mental state.

I saw her daughter (age appropriate to myself) in a wide variety of mental states and felt a bonding.

I'd even had far-fetched ideations of a scenario where I might become a romantic legal guardian (this is prior to the advancement of the relationship interest in my new girlfriend) in a psychological "Nodding Hill"-cum-GeorgeClooney-Sudan Hollywood-oid life-script
(hey I'm a creative-minded artist, what can I say)

I'd like to see the girl again, and I'd like to do it by going through her mother, or not at all, due to the circumstances. I'd like to see if it could be a good way to have a local space-traveller who seems to know parts of my home galaxy.

Do you think it's a good idea?
do you think it would be good to know a fellow CWE'r in real life?

she seems to be a good relationship for me in that regard
maybe, maybe not - I really do not know her that well yet

 

[petero]

thanks Rae

I'm confused too
and that's another reason I like leaving my seizure periods in the dust and just try to move on after I'm out of them, because they make no sense.

I guess overall I'm wondering if auras can preclude a seizure up to a week prior

at what point is it reasonable to lump auras along with a seizure main event, or to just start considering them smaller events of their own accord?

over a week span, would it be more reasonable to say that I had a week-long seizure span? or that I had ten (to throw out a number) seizures/auras over a week?

or should I just not give a crap after a week and just keep on truckin'?

 

[Chaz1]

maybe all the excitment/emotions?

did this very long cluster result in a T/C or have they now subsided Petero?

 

[LJ-Bain]

I suppose it is possible for you to have had a week long aura! There are such things as simple partial status epilepticus...I would think they would show up on an EEG but it sounds like that stage had passed when you were most recently in the hospital.
It sounds like you had an MRI. Maybe that will show some new insight and offer new answers.
I'm glad your new meds are helping you.
I think we have all questioned what is real from time to time with the memory gaps that seizures grace us with.
I find I'm always trying to figure out my triggers and patterns but in the end I just admit defeat. I do my best, but I have yet to figure out my own mind...and I suppose medical doctors have too. Some triggers are obvious but some I think will always remain a mystery.

Congrats on saving your Mom's dog from drowning! You're a hero!

I think it's great if you made a connection with someone...no matter what the circumstances. It's hard to make new friends and we all need friends. What did her Mom think? I would hope that she would remember you too. It's difficult to find people who can truly relate and empathize with our situations.

Great that you have a new friend and that she gets along with your old gf! Tricky combination do doubt!

You sound pretty happy and I'm to glad to see you up and posting again!