Finally fell in a good sleep n then!!

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BoudicaWV

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I was up in my room finally sleeping, i mean the real good sleep your body needs. As you have heard me mention my husband Rob "my ROCK". Well he just started to take some new night meds for RLS I went through the whole tonic clonic seizure, he didn't feel me till the end. Afterwards he was talking to me as he say trying to get me back, when I was finally able to speak I was angry. I know I don't have any right being angry but if he could have held me down I wouldn't have busted my arm over n over now I've got it packed in ice trying to type what a site. My head feels like I've been hit by a Mac truck. Now i'm too scared to sleep every time I close my eyes boom there I go into uncontrollable seizures. So now I sit here praying someone helps me. Words of wisdom anything
Sincerely
Kim
 
Sorry I am coming from the caregiver's point of view. Try with all your might not to get angry at your husband. He is doing the best he knows how to do. We are told not to hold down anyone having a seizure. It is not his fault that this is happening to you.

You really might consider looking at the nutritional alternatives. Some help with seizures at night.
 
Kim,
Sorry you're having such a rough time and sorry about your arm, but your husband did do the right thing by NOT holding you down during your seizure. Maybe he could have rolled you to your side or placed you differently. Sounds like you're angry with the situation, not at your husband. And depressed.

And to Robin, speaking from seizure sufferer's point of view, it sounds like Kim is speaking from the "post-ictal" point of view. We all know it isn't anyone's fault that this miserable condition is happening to us, just try to listen and understand!

Cindy
 
I, too

am sorry you're having such a rough time. As a fellow E patient, I understand where you're coming from, I really do. As for the sleep, I understand that feeling, too. I very rarely get to that point--for several reasons. I know when I wake up from my t/c's with my broken bones (and I've broken many) I just wish there were a miracle cure for this blasted thing......

At the same time, I know that the people around me do the very best that they can given the circumstances. With one exception in my own personal life, which I won't discuss. And, it's hard on them, too....
 
Meetz1064

Wow the whole breaking bones sounds so familiar i've actually lost count on how many bones i've broken. Stinks but it goes with the territory. So sorry for your suffering, I hope everything gets better. If u need me i'm here.
Sincerely,
Kimberly
 
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