Now, didn't I say I was awful at Forums.
I wanted to do a little bit of an update for you all.
My neurologist put me on Lamtorigine, slowly increased over time to 200mg a day, which stayed put for about 6months, until January this year.
I started experiencing what I could only describe as blank outs. Moments of time passed by without my knowledge. I couldn't recall what happened in that time, and I didn't know how I ended up where I was when I realised what was going on.
After describing these events to the Doc, he increased my lamtorigine and I am now on 300mg a day of Lamotrigine. This seems to have got these Blank Outs under control.
A problem I find with my Doc is that he doesn't explain things to me, he just nods his head, scribbles in my ever growing file and gives me tablets. So I'm doing alot of my own research :|
However, since the increase the weight loss has done a massive U-Turn and I have not only put on the weight I lost, I have put on about double that again.
On top of that I am now also having to take two types of sleeping tablets and have tried 3 different types of anti-depressants due to two horrible experiences in my local hospital last year.
To cut the story short: I was admitted with suspected apendicitus, and was put into a side room. 3 days later I was told they would operate, was put Nil By Mouth, 12 hours later, no IV's set up, and having a Nurse tell me I was not allowed to take my lamotrigine they cancel the surgery.
Surgery goes ahead the next day. I was kept in the hospital for 3 days after that due to complications during the surgery (which I am yet to discover what that was) but not once were my surgical dressings changed.
12 days after original surgery I was rushed back into the hospital with Peritonitus, and had to have another surgery to remove all the infection, and the infected tissue in my tummy.
I was left with a 3 inch long (and god knows how deep) hole instead of a belly button for 3 months.
I had to have nurses visit me at home every day to care for me because I couldn't care for myself and my Fiance works long hours.
My work refused to support me, and my boss called me every day telling me how unfair it was on him to have to work 7 days a week because I was off. My area manager told me to grow up and get on with it.
And to top it all off the hospital say they are not at fault, although they have apologised for not changing the dressings.
They have also admitted that their care of patients with epilepsy was not up to scratch and all staff wil be receiving up to date training.
I am now about to begin therapy with a local NHS support group, and will slowly be taking up dance again.
I think that is everything... again, really sorry!!
