First Experience with Seizures

[DadofTwins]

Dad: Here is a quick breakdown/differences between a 504 and an IEP (taken from a University Website):

The Individualized Educational Plan (IEP) is a plan or program developed to ensure that a child who has a disability identified under the law and is attending an elementary or secondary educational institution receives specialized instruction and related services.

The 504 Plan is a plan developed to ensure that a child who has a disability identified under the law and is attending an elementary or secondary educational institution receives accommodations that will ensure their academic success and access to the learning environment.

Subtle but Important Differences
Not all students who have disabilities require specialized instruction. For students with disabilities who do require specialized instruction, the Individuals with Disabilities Education Act (IDEA) controls the procedural requirements, and an IEP is developed. The IDEA process is more involved than that of Section 504 of the Rehabilitation Act and requires documentation of measurable growth. For students with disabilities who do not require specialized instruction but need the assurance that they will receive equal access to public education and services, a document is created to outline their specific accessibility requirements. Students with 504 Plans do not require specialized instruction, but, like the IEP, a 504 Plan should be updated annually to ensure that the student is receiving the most effective accommodations for his/her specific circumstances.

Thanks for the clarification. I will investigate further.

 

[DadofTwins]

Thanks!

Dad,
Is this the week of her period? or the week leading up to or before her period? Hormones play a huge role regarding seizures in women. It is possible her seizures are catamenial in nature (linked to her cycle)

Also, if she did not have a seizure during the EEG, the EEG will 90& of the time not show any irregularities. Plus sometimes it takes up to 48 hours prior to the physical seizure for that seizure to start. So if the EEG provoked the seizures it could be a while before she actually has the seizure.

Also get her to wear a pair of polarized brown sunglasses in the class room (call the school ahead of time to let them know she will be doing this) Fluorescent lights can trigger seizures as well. I know with me, reading under fluorscent lights makes it look like the words flicker. Wearing polarized lenses helps with this. You can pick them up at any sunglass hut or walmart around you for about $10-$30

You gave a lot of information there. This is the week before her period, but the first seizure was on May 1. She only got it a year ago, low body fat was the explanation. Not sure if she will go for the sunglasses, but it is worth a shot. She is in denial and wants her life back. No seizures during the EEG despite two nights of sleep deprivation and lights.

Someone mentioned Lyme disease as a seizure trigger. Had a blood test yesterday. Awaiting results.

Thanks again!
Tom

 

[DadofTwins]

Zara,

Let's hope it gets better for you!

Tom