Hi guys,
I thought I would update some folk on my girlfriend but also vent my frustration at the hospital.
Long story short, Kate had a bunch of T/C seizures last Wednesday night. I called an ambulance as I felt it was too many in too short a time.
Cut to Friday and Kate is still not herself. Saying odd things, thinking she was somewhere she wasn't etc etc which as far as I understand can be quite normal after such severe episodes.
Based on questioning Kate, while she was obviously still confused, they came to the conclusion that it was alcohol that had triggered the seizures. Apparently Kate had told them she had been drinking a decent amount the weekend before (21st/22nd April). They went on this information. I've only just found out today about this. I'm pissed off that they made their conclusion based on info from an obviously confused person.
Kate actually hadn't had anything to drink since the week before (13th/14th April). Even then she hadn't wiped herself out or anything. It was a few wines with her mother.
I do realise that alcohol can be a trigger for some but after 4 years we don't believe it's a major factor.
Anywho, after sitting in with the doctors as they spoke to Kate, I noticed a disturbing thing. They were no longer even evaluating her epilepsy anymore, they were evaluating her mental state.
Now the day or two after the episodes she definitely was not herself. Acting kind of strange sometimes and saying odd things but I considered the bunch of prior seizures a contributing factor.
The doctor that was there today essentially ignored me when I mentioned Catamenial Epilepsy and was purely talking about the Phsychiatric team evaluating her before she can leave.
They were all prepared to let her walk out of there with no progress on her Epilepsy and on the same medication as when she went in. Where the hell would that have gotten us???
All of this without one person making a call to me or Kates mother about anything. How can they base anything on what a person who is clearly all over the place says?
That seems so negligent to me.
Anyway, I've spoken to the nurse that is looking after Kate and explained this all too her. She knew what Catamenial Epilepsy was and could completely understand why I was concerned.
So now I am awaiting a call from either the Psych team or her doctor in the hopes of clarifying everything. I have no intention of having Kate come out of a week in hospital with the cause being alcohol that she never had and doctors relying on information from someone that thinks they are in a workplace they were in 6 years ago. C'mon!
Bloody doctors lol
I should also add that Kate is now much better. She knows where she is, why she is there and what is happening. Just some memory problems. She actually asked the doctor while I was there if it was normal to have these memory problems after seizures, guess what his answer was........"No" :?:
I thought I would update some folk on my girlfriend but also vent my frustration at the hospital.
Long story short, Kate had a bunch of T/C seizures last Wednesday night. I called an ambulance as I felt it was too many in too short a time.
Cut to Friday and Kate is still not herself. Saying odd things, thinking she was somewhere she wasn't etc etc which as far as I understand can be quite normal after such severe episodes.
Based on questioning Kate, while she was obviously still confused, they came to the conclusion that it was alcohol that had triggered the seizures. Apparently Kate had told them she had been drinking a decent amount the weekend before (21st/22nd April). They went on this information. I've only just found out today about this. I'm pissed off that they made their conclusion based on info from an obviously confused person.
Kate actually hadn't had anything to drink since the week before (13th/14th April). Even then she hadn't wiped herself out or anything. It was a few wines with her mother.
I do realise that alcohol can be a trigger for some but after 4 years we don't believe it's a major factor.
Anywho, after sitting in with the doctors as they spoke to Kate, I noticed a disturbing thing. They were no longer even evaluating her epilepsy anymore, they were evaluating her mental state.
Now the day or two after the episodes she definitely was not herself. Acting kind of strange sometimes and saying odd things but I considered the bunch of prior seizures a contributing factor.
The doctor that was there today essentially ignored me when I mentioned Catamenial Epilepsy and was purely talking about the Phsychiatric team evaluating her before she can leave.
They were all prepared to let her walk out of there with no progress on her Epilepsy and on the same medication as when she went in. Where the hell would that have gotten us???
All of this without one person making a call to me or Kates mother about anything. How can they base anything on what a person who is clearly all over the place says?
That seems so negligent to me.
Anyway, I've spoken to the nurse that is looking after Kate and explained this all too her. She knew what Catamenial Epilepsy was and could completely understand why I was concerned.
So now I am awaiting a call from either the Psych team or her doctor in the hopes of clarifying everything. I have no intention of having Kate come out of a week in hospital with the cause being alcohol that she never had and doctors relying on information from someone that thinks they are in a workplace they were in 6 years ago. C'mon!
Bloody doctors lol
I should also add that Kate is now much better. She knows where she is, why she is there and what is happening. Just some memory problems. She actually asked the doctor while I was there if it was normal to have these memory problems after seizures, guess what his answer was........"No" :?:
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