Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.
Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!
Hi Doctor J!Hi Robin,
It's great to hear from you! Thank YOU for the positive comments and encouragement. I'm glad that the word is spreading through your family. It is running like wildfire through mine and my new extended family (my daughter got married last month). Turns out, she married into a family of celiacs, including her new husband. He is doing GREAT on the diet (allergies, chronic fatigue, IBS...the usual suspects).
And I'm glad that the viral model makes sense to you. I spoke on this specifically at this year's North American Veterinary Conference in Orlando. It made sense to them, too. It's just that most, including myself for years, don't think of viruses from the right perspective. As it turns out, they are one of those things that were meant to do good but were forced into becoming "pathogens" by our actions. All we have to do is see the good that they do and HOW they do that good and we can see how WE made them bad.
Once again, "We have met the enemy and he is..........us." (Pogo)
Bernard just sent me a great link to a group that does grants for studying things like The G.A.R.D. It's time to explore that avenue. Perhaps some media coverage will help. The pump has been primed by the (limited) success of the ketogenic and modified Atkins diets, both of which limit many of the things in The GARD but for different reasons. Once we see the mechanisms behind lectin damage, we can see that some will not respond until these antibody-sized proteins are completely eliminated, not just limited. I tell people to think "peanut allergy" in order to get a feel for the degree of sensitivity to these proteins (gluten, dairy, soy, corn) that some experince. Gluten kills neurons as can the others. And we are talking about VERY small quantities in some.
Keep in touch.
John