Getting a second opinion ... no monitoring for now

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AlliOz

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Hi all,
I first posted a few days ago and have been visiting a lot and really impressed by the kind people here. Also SO GOOD to read other people's experiences and feelings that reflect mine. It's always been SO HARD to articulate what my auras/absences feel like. I have left temporal lobe e, was diagnosed in 2004 after a couple of nocturnals then a t/c. I had a car accident six weeks' ago, which has prompted significant change (see my first thread). Anyway, was going to have video EEG monitoring to see if my neuro could work out anything more, but I decided to seek a second opinion from an e specialist rather than a general neurologist. I'm seeing the specialist at St Vincent's in Melbourne on Aug 28. My neuro was very good about it and said he'd call the e specialist to discuss my case. It was very reassuring that he was not put out by my wanting second opinion ... I really, really, really hope that this new guy, who is considered very good, can come up with some answers and better medication for me so the frustrating horrible auras etc (or more) can be better controlled and I can get on with my life (well, partly ... can't drive for a year bc of accident) ...:rolleyes: Oh, and by the way, sorry if this isn't the place to post this ... still learning ...
 
Hi Alli,

Could luck with the epitiologist appointment. Do you know the name of the epitiologist you are seeing?

I haven't been to St Vincents hospital before so can't tell you how good they are. The epitiologists I've seen are at the Austin Health in Heidelberg.
 
It can't hurt to get another opinion, and it can definitely help. Hope the seizures aren't too bothersome between now and your appointment later this month.
 
I'm seeing A/Prof Wendyl D'Souza at St Vincent's. I've been told that St V's, Austin and RMH are really the only places go for E in Melbourne. So fingers crossed ...
 
AlliOz said:
I'm seeing A/Prof Wendyl D'Souza at St Vincent's.
Click to expand...
My friend who also has epilepsy sees Wendyl & she thinks he's great :).

I was put in contact with one of the epilepsy educators from the Epilepsy Foundation of Vic at the end of 2009. when I 1st met my epilepsy educator she suggested to me to see if I could see Wendyl but my neurologist had already given me a referral to see Prof Sam Berkovic from the Austin.
 
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