going from bad to worse

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cupofjoe

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Things seem to be progressing in the wrong direction. About a month ago I developed new symptoms, disequilibrium, and flashing lights. My neurologist increased my meds but I reacted poorly to the increase. Yesterday something happened that scared the hell out of me. I am still allowed to drive as I do not lose consciousness. However when driving yesterday I had two scarry incidents. The first incident I almost hit another car head on pulling into an intersection. I tried to convince myself that sun was in my eyes and that was why I never noticed the other car was there.
Later that day I heard my wife yelling that I was on the wrong side of the road. I suddenly realized that I was in fact driving down the opposite side of the road and did not know it at all. I have no idea what happened. It was as if I just woke up there.
Any thoughts, I am scared.
 
cupofjoe

You are having it rough at the moment with your meds, so what do you think is the first question should you drive its a decision you need to make and only you can make it. It sounds like first you need to find the right medication for your seizures. Did the neurologist tell you what it might be. Being scared is ok, even after all these years I still get scared and I have epilepsy since childhood, so you are ok. When you get things sorted out you will settle down better in the mean time tell your doctor and neurologist about what is happening and your feelings.
 
I guess part me knows that i have to call my nerologist tomorrow. I just dont know what to do if i cannot drive. I am waiting for test results from the neuro before she will start trying new meds. She is talking possible.combinations. Not sure what though.
I am just scared of this progressing. Up until last month it seemed to be controlled. Now it is lookinv worse than before.
 
cupofjoe

No its no looking worse, just harder and this will not be the first time you have had a hard time and like the rest of the times you will get through it. Not being able to drive right now is a big disadvantage but think of the consequences. Waiting for the results is hard no doubt about that and I am on a combination of meds. I drive and work so things will start to look up just not straight away.
 
That sucks. I haven't driven since my October seizure. It's not easy to not drive, especially when you're used to it. I had to give up a job. But that's better than vehicular homicide. Stay safe man.
 
cupofjoe said:
I suddenly realized that I was in fact driving down the opposite side of the road and did not know it at all. I have no idea what happened. It was as if I just woke up there.
Any thoughts, I am scared.
Click to expand...

This sounds like a CP seizure, since you feel like you just woke there and have no recollection of the incident. So you need to tell your neuro, especially since you felt that way earlier in the day, also. And it will be better not to drive for a while. Better to be safe than sorry.

Back in December, I had a CP seizure while coming out of a parking lot and plowed into a tree, across six lanes of traffic. Fortunately, no one was injured, except my car. It was totaled. And I won't be driving again for a long, long time.
 
Thanks
I appreciate your comments. I am having a hard time staying positive at the moment. I guess I need to do some soul searching and try to find a way to stay positive.
 
cupofjoe, if it makes you feel any better, after my last seizure cluster I am left feeling like I'm in the wrong year, or wrong season.
 
Lol. Thanks Chargingbird. Don't know if you meant to but you put a smile on my face.
 
cupofjoe said:
Lol. Thanks Chargingbird. Don't know if you meant to but you put a smile on my face.
Click to expand...

I try ;)


I honesty feel like my memories have been transported to some other year, in my past and I'm having to work my way to the present. It's a bitch. A couple things I'd rather not relive. But hey, I'm alive, and I guess I have to take that for what it's worth.
 
Take a deep breath.... you are going to be OK
This is not going to be easy.
There is some adjusting to do, the unknown is scary for all of us.
Have you started keeping a diary? Noting seiz. time, date. any triggers you can thing of.

It has always taken a combo to keep my seizures under control for the most part.
 
I have not been keeping a diary. I will start that now though. It was something I always thought of doing but never did. Especially when things seemed to be under control.

Live and learn right.
 
We can be diary buddies. Because I suck at remembering to write something every day. I'll have a boring day, nothing special, or a few in a row. And it's usually at the end of several boring 'normal' days that I"ll be surprised by a seizure in my sleep.

Today I"m trying not to call my doctor and scream at him over the phone. He's just a GP, but I finally got a reply from one of my attempts at contacting him. His only message was "if you weren't having seizures on the meds, why aren't you taking the meds" Um, because I had an aura and a seizure on the meds, which was what prompted the second EEG!!!! AAARRRGJN:VN:SLDGO I:FHWDOI:WHn

SO mad I could spit.
 
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