Grrrrr

[JaneC]

My daughter had a breakthrough TC in the shower. We'd become lax about her locking the door as she has had no seizure activity to speak of since going on meds last summer, so my husbands had to break it down to get to her.

Feel the need for a wee vent. She won't contemplate putting her meds back up a little because it affects her at school and it's a crucial time there at the moment. She missed work yesterday and I'm not sure how that's going to go as they were horrible in her previous job - even though the manager's sister has E.

She was asking last night "why me?". How do you answer that? I know other people's experiences of E are so much worse but didn't feel last night was the time to mention that.

She didn't dwell on it though and my heart breaks for her. It was a reminder that if she tries to be a normal teenager (party and not enough sleep the night before) there can be consequences.

Meanwhile I'm back to being freaked out by the whole head injury thing.

My husband was diagnosed with a pituitary tumour on Friday so it's not been a great weekend. That should be fine (surely?) but he has to have a biopsy next week.

I've probably got a touch of the "why us-es" myself. Sorry, just needed to let all that out.

 

[Nakamova]

It's never a good time for a seizure, but maybe it was a tiny nudge that will help your daughter stay safe. Even at my advanced age, I've needed that nudge from time to time.

I'm so sorry to hear about our husband's diagnosis Jane. Big hugs to you. Please vent away, you've got plenty on your plate. Keep us posted on how things go for your daughter, your husband, and you too -- make sure to take care of yourself too.

 

[Cint]

Hi Jane,

Sorry you're daughter had a breakthrough TC seizure. The shower is not a safe place so I'm glad your husband was able to break down the door in time. My 1st TC was in the shower years ago and I suffered 2nd and 3rd degree burns from the hot water. So please, let her know, don't lock the bathroom door if one has TC seizures. You never know when you may have a breakthrough seizure.

I hope it goes well for your husband. Hang in there.
{{HUGS}}

 

[JaneC]

Thanks for replying Nak and Cint, I do appreciate it. I'd just half started to get my head round my husband's diagnosis when this happened.

Nak, you're right, I suppose it does no harm to get the occasional reminder to take care. Perhaps it wasn't a straightforward lack of sleep thing but that on top of the stress of her upcoming exams. She has an appt with her CBT person tomorrow so that's good timing.

Cint, I'd forgotten about your shower experience which must have been incredibly painful. Our shower is over the bath so my big worries were the fact it sometimes doesn't drain very quickly and head injury. Believe me, she won't be locking the door again.

My husband and I are going away for a couple of days at the end of the week which is a bit of a worry and rosie is away too at a music weekend with her school. Fingers crossed xx