Habbit of Seizing?

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LW6279

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Hey everyone,

How can you stop the maddness. I can't take medications due to alergies and bad side effects. Petrified of going status! I have simple and complex partials sometimes full blown T/C's. I feel I am all alone doctors I don't trust. ER's I try to avoid them like the plague. I'm saving up for EEG NB but have months to go. I feel alone and like I will have a siezure at any moment all the time. Is it possible to be in a constint state of simple partials. That's how I feel all time anymore. My Dr. thinks I'm nuts but he can think that if he wants. I'm ok with that. I know I'm not and am ok with that. So, I'm at a cross roads of what to do next.
 
I feel I am all alone doctors I don't trust.
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It's important to be able to trust your doctor. Can you find another? I know that process can be a pain, but it would be worth it to remove at least that one stressor from your life.

Since medications are out, I agree that neurofeedback would be a good choice. Have you spoken to a neurofeedback practitioner? Let the practitioner know that you would like to find a creative way to get the process going sooner rather than later. Perhaps you could start the process sooner by putting some money down now. Or work out a sliding scale payment or barter?

Other treatment options to consider (if you haven't already) are dietary and other complementary approaches. This is a great page to revisit for ideas: http://www.coping-with-epilepsy.com/forums/f22/proactive-prescription-epilepsy-1254/
 
Thank you for the link! I had a really good nuero and he got a brain tumor and retired. I had seen him for 13 yrs. I miss him so much. I will be working with a Neurofeedback center not far from my house. I have already visited there and spoke with them about getting started. I am on a waiting list. They have had great success there with other patients and work with all types of problems. I can't wait to get started. I'm going to call them in the morning to see if they can tell me a good Dr they work with. I would feel better about that. My new Dr. now does not even want to here about NB and he is into sleep studies. I don't underestand that one. I think he just wants to push the drugs on me. I just hope my brian will allow me to wait until I finally can start my NB. I just feel so messed up anymore. I don't know if I'm coming or going. All I want to do is sleep. I'm just plain tired. Thanks again for the link I'll check it out.
 
Let us know how it goes. Unfortunately, I think most neurologists are very skeptical about neurofeedback and much more comfortable prescribing medications. Hopefully that will change in the future as more larger-scale studies are done with neurofeedback.
 
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