Had a lovely chat with E nurse today

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Loopy Lou

Loopy Lou

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She called to see how i was doing after my appointment with the neurologist, since i hadn't been in contact with her.

We had a good long chat about perhaps trying Vimpat (Lacosamide) as well as my 3000mg keppra a day, to try and get my partials under control. We weighed up the pros and cons and decided to give it a go, but she's suggested i start at a very low dose and then work up slowly until i'm on 200mg a day, since i'm petrified of side effects.

Since i'm off work sick at the moment, i figured it's as good a time as any to start it. I have a doc's appointment on saturday to discuss insomnia and through-the-roof stress levels, so i'll go see him then.

I was wondering... I've heard that Vimpat can cause blurriness or double vision - i wear glasses for everything except reading up close and was wondering if i should go get my eyes checked before i start on this medication. I'm due a test in a couple of months time, but i wouldn't want to go for my eye test with blurry meds-vision and then end up with the wrong strength glasses.

We also talked about how things are going at work and that i feel like i'm ready to work full time again, but i don't think i could cope in the job that i'm in. Well, i just applied for a job with the same sort of company, but a mon-fri desk job in Admin instead. Not exactly what i want to do, but practical, reliable and do-able lol.

Everyone should have one of these nurses, especially since actually getting hold of my NHS neurologist is a nightmare!
 
Wow... that nurse sounds great! Let's clone her.

I'm extremely glad to hear that you feel ready to work again. That is wonderful! :)
 
Loopy Lou, can you send us one of the nurses to North Carolina? She sounds like really cares about you. Count your blessings on having her as a nurse.

Have a great week!
 
she really is a god send, and the only person i feel i can talk to freely and ask stupid questions about my epilepsy, and talk about my fears and worries with openly (except maybe for this forum). Endless - i do still have a job, i've just been signed off sick for a few weeks. Alas, only one week to go til i go back. I defo need a new, full time one i can handle though lol.
 
I will keep my fingers crossed that the other job comes through for you, even if it isn't exactly what you want to do. Less stress is much better! I have been on 200mgs of Vimpat with 2500 of Keppra, and haven't noticed any eye problems at all, or anything else. Let's just say nothing different. I still have tiredness off and on, but who doesn't?? Good luck!
 
Well, i've decided i definately want to give it a go. The Keppra seems to be mostly controlling the tonic clonics, i had one a couple of weeks ago, but before that i didn't have one for about 3 months.

Apparently Vimpat is good at helping with partials and absences.
 
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