Has anyone here had seizures coming from the Parietal Lobe?

[tam bam]

Back in October of last year when I had my 2nd EEG my neuro told me that he saw a seizure coming from my parietal lobe. I saw my neuro a few weeks ago and he asked me some questions regarding my symptoms. Numbness, tingling, language problems, etc.

On this last visit with him I requested to go to a research hospital to see an Epileptologist mainly due to my symptoms being so weird and because I am not controlled. Has anyone else here had these types of seizures? There really isn't much out there regarding these types of seizures and the other reason for going to the research hospital is to investigate whether or not my seizures are really coming from this particular lobe or not or if the EEG was wrong. From what I have found and read my symptoms do have some similar characteristics.

tam bam

 

[RobinN]

Can't help you there Tam Bam.
I am sure if this is of concern to you that further testing will help you pinpoint where exactly they orginate. Are you considering surgery? Some of the good hospitals have brain mapping that can pinpoint this, to see if you are a candidate.

In our journey, my daughters seizures have generalized into tonic clonic seizures. I learned that seizures are just the symptom, and I have worked hard to figure out the cause. It has taken a lot of research and turning over every stone. Conventional doctors weren't much interested in helping me figure out the cause, only to treat the symptoms. That wasn't acceptable to me. Testing helped me to understand the journey, but it has been understanding overall body health, and how that effects brain functions that has been the answer for us.

 

[tam bam]

Thanks Robin. I guess that is what I am after. I want to understand and not just control it but yes, understand it as well. I too suffer from many, many, many tonic clonic seizures. My seizures started off very subtle and now over time it seems as if they have kind of morphed or progressed in nature. It is weird! Of course, a lot of things are weird with my seizures. I don't share a lot of the same symptoms as a lot of you do on this forum. For example, painful seizures and stomach seizures to name a few. The seizures have only worsened with time and I fear that age is only making them worse. I guess I need some sort of reassurance from a well qualified doctor who knows more and I am not getting it so I feel like I must learn more and stay on top of this and most importantly try to get my seizures under better control before I injure myself.

I do not want surgery but if need be I will do it but that is last resort. Thanks for responding. You were helpful and best of all reassuring.

tam bam

 

[tam bam]

Okay, well I goofed. My neuro, which he is great btw, he has an accent and I misunderstood him plus I had a seizure the day we discussed the findings and I wasn't totally there and my husband was tired from the drive so he thought he heard something different too. I thought my doctor said he found the seizure in the parietal lobe but when I went to see the epileptologist yesterday he said the report stated it was found in the frontal lobe which makes better sense to my symptoms now.onder:

Anyway, I had this totally wrong and I wanted to correct myself. The seizure was found in the frontal lobe not the parietal lobe so my neuro thinks I have FLE not PLE.

tam bam

 

[dfwtexas]

I actually found out today that my epilepsy is in left parietal lobe with generalized spiking on the right side of my brain as well. I thought I had heard him say temporal lobe, so I am just opposite of you tam bam!
This actually makes some sense for me as most of simple or aura are all visual.

 

[dfwtexas]

Knowing now that my seizures are from Parietal Lobe, it makes me wonder if I am truly photosensitive or is it because of the orgin of my seizures. Doing some searches on internet, it said that parietal lobe E is rarest...but still hoping someone on here can enlighten me

 

[tam bam]

Hi Jgbmartin,

I do not actually have parietal lobe epilepsy. I was not at my sharpest attention mode that day and thought that is what my neurologist said but he told me that he saw the abnormality in the frontal lobe in my case but that is also still in question now by an epileptologist as we speak. *Sigh* I just hope they finally figure me out. Whether if I have PNES (pyschogenic non-epileptic seizures) or frontal lobe E or not. No one can seem to agree on anything conclusive. My neuro says for sure I have epilepsy and now I have an epilpetolgist that is questioning his diagnosis. I am still a mystery case but at least they pinned it down to two things so that is good at least.

Anyway enough about me, back to your findings. That is good that your doc has found your type of E and yes you are correct yours is the rarest. I am sure you know by now there is not that much on the net on parietal lobe E. I found a very good website that I would like to share with you and I am not too sure if I can post it on the actual forum so I am going to pm you and give it to you. :banana:

tam bam

 

[dfwtexas]

Tam Bam,
Thank you so much for sending me some information on this. The more I am learning about this, the more it makes sense to me about my seizures.
jenn

 

[tam bam]

Glad that I miss understood my doc and was able to read up on this particular epilepsy and help out such a nice person like you Jenn. You are so welcome. I hope you learn a lot about your type of E. and I hope you get the help you need to control it. Let me know how you are doing.

tam bam