Has it switched to nocturnal?

[aggy84]

Hi there all!

IF any of you saw my previous posts from a while ago I was the girl who thought she was having panic/anxiety attacks when it turn out to be complex partial seizures. Diagnosed finally after 3 MRI scans and an EEG.

I was put on Keppra initially that made my seizures 10 times worse and actually pushed me to want to not want to wake up, I was really really depressed. Drastic I know! I'm so upbeat so this was totally weird. Anyway off keppra now and on Lamotrigine and all seemed to be going well! I'm on 75mg twice a day (trust me to have an awkward dose!) the last seizure in the day was 6th April 2013 in the car on the way to a wedding and it was less intense. Since then I've not had any in the day.

Now... this is where it gets more confusing. They put me up to 100mg for some reason but it caused me to have really disturbed sleep, I had what I thought was a night seizure although unlike my others (and previous night seizures) it felt like the beginning of one but never actually peaked.
I was taken back down to 75mg and all has been fine... until now.

I have just moved house (still unpacking!) and have just got a new job I start at the end of the month so lots going on...I am aware I've had some late nights and am a bit stressed. I have now started to have these attacks in my sleep. I will wake or be slightly awake and suddenly a weird fearful feeling sweeps over me, I will be uncomfy so will turn to one side then the other, not vigorously but will be fidgeting... then sometimes I noticed that I will swallow more than I would do normally (something I used to do during a seizure) but again its not as intense and doesn't feel like it peaks like my old ones.

I used to get migraines or a headache after a seizure but that hasn't happened much, only once after one of these. Like my seizures I lose my memory of it a bit and especially because I'm half awake so have no idea if I've dreamt it! I don't think its a night terror or a seizure.

It does leave me feel quite drained and will take me a good hour after to feel like me again

Any ideas guys?

Is this a seizure or is anxiety or what the devil is it?! xx

 

[BrandiBrat]

Hi there, many people get nocturnal seizures even after their daytime seizures are under control. I have nocturnal seizures and I'm a wanderer. I get out of bed and do all sorts of crazy things that I won't remember the next day. Luckily, I've never left the house or driven the car but I wake up to injuries and often feel terrible.
The proper way to find out what's going on is to ask your neurologist to do a 72hr ambulatory eeg so he or she can record what's going on in your sleep for a couple of nights.
Take care of you during this stressful time...moving is hard and can create a lot of stress for your body. Get lots of help and be sure to get enough rest.

 

[Janus]

Hi, I relate. For a long time I only had temporal lobe seizures, which to me were an intense, emotional experience that involved a deep feeling of total fear. It was/is weird and almost primal. I am not sure if the fear sweeping over you is anything like that but that does happen.