have any of you who have seizures seen someone else, in real life, have a TC seizure?

[Kaitybugsmom]

Oh thats just awful

I still cant imagine for the life of me how that doesnt hurt during. Maybe thats just the neurologists way of trying to comfort me.

 

[acpollard2010]

it doesn't at least for me it's always after cause im not there! unless u have partials?

 

[qtowngirl]

Oh thats just awful

I still cant imagine for the life of me how that doesnt hurt during. Maybe thats just the neurologists way of trying to comfort me.

Trust me/us sweetie... we're talking first hand... it doesn't hurt during a tonic clonic. It can't because you are FULLY unconscious. Fully. Like you say she hurts after as muscles were so tensed during, but she's not aware of that at the time. The docs are telling you the truth =)

 

[petero]

Oh thats just awful

I still cant imagine for the life of me how that doesnt hurt during. Maybe thats just the neurologists way of trying to comfort me.

because your brain goes through a trauma similar to that of being knocked unconscious from a blow to the head - and you lose consciousness - so the pain sensory/interpretation part of the brain isn't functioning until you're regaining consciousness
and then in addition, your brain could be going through that trauma again as your body is falling limp, slamming your head onto the floor/wall/countertop whatever - black eyes, cracked or broken bones, etc

so you can get a migraine along with that too
or your brain could just get the trauma part without the loss of consciousness giving you a migraine, disorientation, dejavu things, misinterpretations, etc
I'd tell you to experiment with slamming your head onto the countertop until you're unconscious, but that is not something I can recommend, at least not recommend to you because you seem really cool and are nice - lol

 

[Kaitybugsmom]

I'd tell you to experiment with slamming your head onto the countertop until you're unconscious, but that is not something I can recommend, at least not recommend to you because you seem really cool and are nice - lol

There are days when I feel like doing that...If it ever comes to the point where I actually do, do it I'll let ya know how it went :zacepi:

Thank you for the compliment. :daddyo:

 

[petero]

oh and we're not even talking about the changes like: stop driving, start taking pills that can make you sick, lose your sex drive, change your diet, paranoia about diet (for a while I've stressed about and accounted for almost everything I ate ... but am getting more relaxed about that because stress isn't good either)

and one thing I found myself doing (and have been changing) is going places and thinking a few or many or all people wherever I go know I have epilepsy and looking at me like "oh shit here's that guy - is he going to have a seizure?" - and thinking instances are contrived in a sense in that way, or other bizarre ways

 

[petero]

There are days when I feel like doing that...If it ever comes to the point where I actually do, do it I'll let ya know how it went :zacepi:

Thank you for the compliment. :daddyo:

you're very welcome

 

[Trinity]

I was donating blood and I had my daughter who was 4 at the time sitting on a little chair next to me. Lady on the other side who was just starting her donation went into convulsion. It was very short, like 20 seconds or so but there was blood everywhere. When she came too the lady said "oh this happened lat time". To be honest I am surprised she went back after the first time but more surprised they didn't have a record of it. They had to take my daughter out the room because she was upset and I have never taken my kids with me to the blood bank again.

Also when I was in school there were a couple of others with epilepsy in my grade. One girl had absence seizures but I don't recall ever seeing one. The other girl had TC and went into status on the bus ride home. That was scary.

 

[Abynorml]

I've seen a friends dad go tonic clonic during dinner at a restaurant, he suddenly froze mid sentence had a strange grin on his face and collapsed, I've also seen a dog go into seizures.
I feel for the folks who get accused of being on drugs, my hands shake from essential tremors, and I often hear people accuse me of being either a drunk, or a meth addict.

 

[gigi]

side show

I never watch the videos of seizures on you tube. I have my own horror show with my seizures thank you! I did see a lady ions ago when I was a teenager at a department store have a T/C. I was with my Dad, and that was not his area of expertise, and he was concerned but horrified at the same time. Very sensitive fella like myself, so we looked for a salesman to call 911. This was pre-cell phone days. I did witness my little brother have one when he was a kid. He had what they called petit mal seizures, now would be complex partial?? He did the, "grow out of them" thing, where as I was lucky enough to hang onto my T/C's! Gifted me! I am sure I have witnessed others, just not recognizable as a seizure - there are so many kinds.
As far as people assuming what is really going on. I suppose we can attribute that to human nature. At some point we all assume something we should not.

 

[Trinity]

Petit mal are what are now called absence seizures or commonly known as staring spells. They are generalised seizures effecting the whole brain just as tonic clinics do.
Complex partial seizures effect only part of the brain and a person may walk or talk and not make any sense. They may hear but not fully understand. They may repeat movements such as lip smacking but have no control or perhaps not be even aware of them. There is always some effect on awareness with complex partials. Partial seizure symptoms with full consciousness and awareness are simple partial.

After an absence seizure the person is apparently alert although there may be confusion if they have missed things. After a complex partial the patient is often confused and not alert. Although I am sure there are exceptions. Plus I am only reiterating what I have read about the subject. I have had neither of these seizure types.

 

[gigi]

Petit mal are what are now called absence seizures or commonly known as staring spells. They are generalised seizures effecting the whole brain just as tonic clinics do.
Complex partial seizures effect only part of the brain and a person may walk or talk and not make any sense. They may hear but not fully understand. They may repeat movements such as lip smacking but have no control or perhaps not be even aware of them. There is always some effect on awareness with complex partials. Partial seizure symptoms with full consciousness and awareness are simple partial.

After an absence seizure the person is apparently alert although there may be confusion if they have missed things. After a complex partial the patient is often confused and not alert. Although I am sure there are exceptions. Plus I am only reiterating what I have read about the subject. I have had neither of these seizure types.

Thank you for clarifying! I have read about these seizures numerous times, after decades of meds, I retain very little info.! So from those descriptions my brother was having absence and complex partials. I have had simple partials in the past, although never diagnosed.

 

[Krista2882]

I've never witnessed another person having a seizure. It would be an awful thing to see, I think. I used to be afraid of going to my neurologist because I was afraid someone else in the waiting room might have a seizure. lol. I also have trouble watching someone on TV have a seizure. I would look away but I'm embarrassed to be around people and have them know that I can't watch a seizure because I've had one.
I think I'm kind or traumatized from my own experience of having a gran mal seizure because for years I was having simple partials, and they kept getting worse and more frequent until one night where I kept getting woken up at night from simple partial seizures, and then one generalized. But it was sooooo scary because I was still conscious for the generalizing part and I experienced being awake but having my body tighten into a ball and being unable to move or scream or breathe. It was horrible. Then I lost consciousness and woke up a half hour later with my tongue all chewed up. My whole body was sore for a week afterward.
I wonder if I was actually unconscious for a half hour, or if I did sort of "wake up" but was in a weird post-ictal state that I don't remember.

 

[petero]

a little aside from the topic
but it is relieving to hear others talk about sleep seizures to be able to relate to my personal experiences
my bed is old, but last night for instance I kept having dreams that I couldn't make sure were real or not - I woke up still in my 'dream' reality and it took me a bit to figure out what happened
I was having dreams of body pain basically and then once I woke up and figured out it wasn't a dream, I realized my right side was totally screwed up - and it still is.

but it seems absurd to wake up in exhaustive pain
it's hard to rationalize on a personal basis
so I tend to detatch from the pain
but I'm guessing detatching from reality isn't a good idea when I already have a neurological disorder

so anyway, it's nice to hear about others' similar issues

strangely, I went to bed trying to recall the details of some seizure events, and tracing back through my childhood to see if any memories pointed toward an onset of my seizures.

I've never witnessed another person having a seizure. It would be an awful thing to see, I think. I used to be afraid of going to my neurologist because I was afraid someone else in the waiting room might have a seizure. lol. I also have trouble watching someone on TV have a seizure. I would look away but I'm embarrassed to be around people and have them know that I can't watch a seizure because I've had one.
I think I'm kind or traumatized from my own experience of having a gran mal seizure because for years I was having simple partials, and they kept getting worse and more frequent until one night where I kept getting woken up at night from simple partial seizures, and then one generalized. But it was sooooo scary because I was still conscious for the generalizing part and I experienced being awake but having my body tighten into a ball and being unable to move or scream or breathe. It was horrible. Then I lost consciousness and woke up a half hour later with my tongue all chewed up. My whole body was sore for a week afterward.
I wonder if I was actually unconscious for a half hour, or if I did sort of "wake up" but was in a weird post-ictal state that I don't remember.