have you ever had a seizure period that persisted

[petero]

have you ever had a seizure period that altered your mode of thinking?
one that you never felt "normal" again after, even though it wasn't your first seizure?
a seizure experience you've felt that permanently changed you?
like, during the seizure maybe that one time the wrong neuron got clobbered, and you've never felt the same since

 

[LJ-Bain]

I think that I have.
Like you wonder....am I still the same person?
It's a strange feeling. Sometimes I wonder though, oh, maybe I'm just depressed and this is just a manifestation. But, I think it is possible.

 

[petero]

I think that I have.
Like you wonder....am I still the same person?
It's a strange feeling. Sometimes I wonder though, oh, maybe I'm just depressed and this is just a manifestation. But, I think it is possible.

maybe it's the Matrix sort of phenomenon - after a couple seizures, it's like visiting the Matrix in the movie - 'real' life can't be the same again - like any medical diagnosis I guess...
nothing is the same from one moment to the next... it's just a big wakeup call. unconsciousness is a wakeup - lol

 

[qtowngirl]

No doubt for me it was the only grand mal I've ever had alone. Like alone alone - boyfriend and kids out of town and no friends or family available. In the past I'd always woke up to faces and voices and people telling me exactly what happened, this time no such luxury.
Waking up on the bathroom floor trying to put it all together and knowing this one was mine to handle without help of any kind, even just to stand up, put me in a different head space when it comes to my epilepsy, hands down. I still remember it as if it was yesterday, opening my eyes parallel to the floor with my head on cold tile. Trying to stand up and get to the bathroom door then forcing myself to sit down as I almost fell over, the whole time naked, wet, and shivering. It was all slow-mo almost like a movie, still feels so surreal.
It was a long night, head pounding, scared, having more partials and not knowing if one would turn on me again... but I got through it.
The biggest change for me I think is now knowing I can handle it alone if it happens again (fingers always crossed), and may sound weird but in a way I guess it gave me a sort of independence. And I look at things differently too - definately take e more seriously than I did before that night. You never know when it's all going to be up to you, out in the boonies with nothing but your knowledge and faith in yourself.

 

[petero]

No doubt for me it was the only grand mal I've ever had alone....

ya - after I was diagnosed I looked back to see if I'd had any other circumstances that may have been seizures and I had one instance where I woke up on the bathroom floor and didn't really know how I got there. I had a pretty bad head gash and there was blood on the floor and dried up on my face and hands.
I'm not really sure how I rationalized it at the time but probably that I just went up to pee in the middle of the night - but since I sleep rather restlessly I'm pretty alert when I do get up.
whatever it was it wasn't fun and was probably a concussion whether from inside-out or not
other than that, I've always been around familiar people when I've had TC with unconsciousness... which had me considering for a while that the people in my life may be stress triggers... which may have some truth to it... still assessing that one...