Have you ever seen a seizure?

Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!

Messages
6
Reaction score
0
Points
0
Something odd I've realized is that, I get seizures, but I don't know what they look like, or anything. Everyone else does, though. Has any of you ever seen a seizure? I've always wanted to see one, just to know, like what happens to me.
 
My wife has epilepsy, I don't. I have seen her have too many seizures of many different types. The TCs/grand mals can be unsettling the first time you see one.
 
I had a customer who had a grand mal in my resturant, 20+ years ago. I went home and drank heavily. They look God awful. I had my first one about 4 years ago and remembered most of it. It was more horrible experiancing it because I knew what was happening and had no control.

My best friend after high school died from status epileptus, but I had never seen her seize.

Then about every 3rd or 4th epilepsy support meeting I attend, someone goes off. The 1st grand mal there was quite interesting. The girl had a mild one by comparison, but not one member in the room had ever witnessed one other than myself. They were stunned, the facilitator freaked out, was shaking and crying. I had the men help put her (the one seizing)on the floor in the recovery position and just waited and reassured the OTHERS in the room.

I would NOT want to know what I look like. I see their scared faces and it's disturbing to me. Those I work closely with can see the simple particals and hear them in my voice. If the SM bother me I go to the break room and wait it out.

Most people just can't deal because it look so painful seeing the body contort itself into odd unnatural positions.

WHEEEE!!! We sure are having fun now!
:elephant:
 
Nope, never have. I guess that that's one advantage to being the epileptic in the family. Never have to see what it looks like.
 
yes, I have

I had a co-worker who had 1) a drop attack, where people just thought he fainted and so did the entire fanning and praying thing.
2) a 'mild' tc, where people in his area were very angry at his need for special attention.
and 3) Same guy, just walked past and noticed he was having another tonic clonic. The people in his area wouldn't help me move his desk out of the way cuz they had rights too, and not until the first responders came did I get him to the floor and had someone but a roll of paper towels under his head (recovery position).
I don't think it's the seizures that are ugly to look at, just everybody's general response.
 
have seen mostly tonic clonics in the hospital. occasionally complex partial with secondary generalisation.
 
I have seen grande mal a few times...many years ago my roommate's brother would come to visit us and frequently had seizures while visiting.
I have wondered what my seizures (simple and complex partials) look like, I looked at you tube and found several on there. I have wondered why no one ever noticed anything when I had them at work...but I have to say now that I have seen it on you tube that I understand.
 
If you really want to see one, there is a video of a young boy experiencing several types including tonic clonic, absence and myoclonic. It's on this link, Katiesmom posted it once before.

http://www.coping-with-epilepsy.com...tch-video-help-raise-awareness-epilepsy-6575/

It was very hard for me to watch, my daughter suffered from complex partial's that generalized into tonic clonic on a weekly basis for over a year and it just really brought back some dark memories.

Blessings,

Ann
 
I've seen CP and generalized seizures, since I have done volunteer work with the epilepsy foundation. I also witnessed a person having a generalized seizure last summer in a bookstore.

The way I feel about it, since my kids had to grow up witnessing their mother suffering through CP/TC seizures, then it certainly won't hurt the general public to witness a seizure once in a while!!

Cindy
 
If you really want to see one, there is a video of a young boy experiencing several types including tonic clonic, absence and myoclonic. It's on this link, Katiesmom posted it once before.



It was very hard for me to watch, my daughter suffered from complex partial's that generalized into tonic clonic on a weekly basis for over a year and it just really brought back some dark memories.

Blessings,

Ann

This video has made me cry! What a touching, emotive and powerful video. I have never witnessed a seizure, though my husband / colleagues have relayed to me what happens when I do.
 
It is a very powerful video. I can't watch it without completely sobbing. I watched so many with my daughter and now I'm just so thankful she is 15 months seizure free on the Ketogenic Diet. Blessings to you and I hope you gain control over your seizures.
 
Yes, I have. I saw a student have a grand mal when I was a health aide in college.
 
I used to have a dog that had seizures. I'd seen her have seizures. I've never seen a person have a seizure though. I've always thought about that. I don't think I'd want to see myself have a seizure.

I've always wondered if I'd be calm and do what needs to be done. I certainly hope so, since I talk to others about how to deal with seizures.
 
I once had a room mate go into a tonic clonic when she was talking to me sittin g on the bed and I kept her from fall off the bed and when she was in postical state I talked to her calmly and her fiance came int the room started yelling at her. I've had plenty of seizures were I've seen what's happened but couldn't say anything or stop it.
Belinda
 
When I was a kid I went to a summer camp for epileptics. we went rock climbing and all kinds of things. It was there that I first saw someone else have a seizure. I was worried for him but I felt good to not be alone.
 
My twin and my friend and I all have epilepsy. My twin and I have complex partial seizures and my friend has several types including TCs, Absence, complex partials and A-tonic. Seizures are not easy to watch no matter what kinds they are. Just knowing the person is having trouble is unsettling.
My twin has a lot of shorter complex partials and some even shorter which are just like absence seizures we had when we were growing up. It's odd because I know what she feels and she know how I feel- she sees mine of course. My friend in high school had a GM when I was right next to her and she hit me of course without knowing it- she just has the tonic phase of the sz and then she had nothing else. It is very scary to see that for the first time and be in the middle of it- everyone helped her and I got out of the way and was very surprised but didn't freak out or anything. Its always better to know what is going on and that the person isn't going to die or being the seizure forever..
Anyways- my friend video-taped several of my seizures and it freaks me out to listen and watch my own seizures because I want to tell myself "come one! Wake up, snap out of it! Hello?" LOL I just look so sickly and totally not myself and to notice the difference betweet normal behavior, consiousness, and thinking to seizure bahavior is odd to me- but no longer scary. We all three live together now and help eachother out.
Everyone take care and be safe.
Crystal
 
yes i've seen a few. I saw tonic-clonic aka grandmal at 10yrs old didnt really get what it was saw some 1 in childrens ward haven 1 in hospital as I was leaven after wrist surgery. I've seen few in other place usally tonic-clonics or complex partials and reactions in church were sad they said he or she were possed. i personly doubted ppl were possed but thats cuz i knew few who had E despite not seeing them have 1 i knew enough to know better. I never much thought i'd be on this end. but i do now have them
 
My daughter has tonic clonic seizures. It is not something that is easy to watch, but now that I know more about them, I am less frightened. It also helps that hers are not as frequent as they use to be. I do believe changing what she eats has made a huge improvement in her seizure threshold.
 
I had a roommate also do a grand mal. Because I knew she had epilepsy, it wasn't so much of a shock as much as a personal concern for her well-being.

The initial one scared me 'cause I figured I looked something like that. The subsequent ones only scared me because I was concerned for her health. Each seizure was followed by an apology from her, but I knew she couldn't control whether one happened.

We looked out for each other. I suspect nobody wanted us for roommates.
 
Back
Top Bottom