We had another appointment with my little mans Paed yesterday to check development etc. She said she is a little concerned with the sudden increase in his head size it had been tracking just below 75% and is not well into the 90%. She said she felt he was also very frontal especially on his right side. At birth he was just above the 25% for his head measurement then had a sudden jump around 8 months up to just below the 75% he also had a sudden increase in his smaller events mainly "Shudder Syndrome" to up to 150 a day. Thankfully this amount never happens at the moment but I find it interesting that he has had another larger increase in his head size and a change in his events to having trouble walking most days after waking etc. His body length and weight at birth started just below the 50% and moved gradually down to the 25% were they have stayed for 14months now which is one another reason his paed is a little concerned. (he's 19months old)
She rang up the metabolic specialist and they have booked his LP in for the same time as his MRI but it is still 4 weeks away. Maybe nothing will show in either of these test but I will admit I am starting to get a bit more concerned as his Paed rarely shows any worry but she did on Thursday.
His introduction to Tegretol has been "interesting" not sure if what is happening is the medication on just the natural progression of what is happening.
I know answers take time but...................................
She rang up the metabolic specialist and they have booked his LP in for the same time as his MRI but it is still 4 weeks away. Maybe nothing will show in either of these test but I will admit I am starting to get a bit more concerned as his Paed rarely shows any worry but she did on Thursday.
His introduction to Tegretol has been "interesting" not sure if what is happening is the medication on just the natural progression of what is happening.
I know answers take time but...................................