My seizures were discovered at work about 25 years ago. I was sitting in a meeting when the fascinating feeling of deju vu came over me and the sing song words, and I knew what they were before they were spoken, and the smell which overtook me, also so familiar. For me the experience was always fascinating, and still is. It was an absence type seizure, so when I looked up, all were staring at me in shock and horror. The company arranged for me to have very thorough testing in a hospital and thus - I was diagnosed with temporal lobe epilepsy. I didn't know of a single other person anywhere who had anything like it. I took carbamazepine (Tegretol) and began seeing a neurologist. The seizures were brought under control with the med, which I hated to take. I had many seizure relapses though throughout the years--some just isolated episodes and a few that came back strong and required going back on meds to get rid of again. That continued to be true. Recently, I had a heart cath done. The next day, the seizures were back strong and I had to begin meds again. They immediately disappeared upon beginning the med. I knew I didn't like taking the med when I was younger (though I was grateful for what it could achieve). Now, I find taking the med to be a really altering experience. When taken at night, I have vivid, confusing dreams and wake up trying to take part in them or whatever. My two dogs are confused and I worry that I could hurt them or something!
You try to put these seizures out of your mind and pretend you never had them, but I guess you never get away from them. Here they are again. I may as well accept it.
Anyways, hello to all!!
