hello everyone!

[kisaacs98]

I am new here and I just wanted to share my experiences with everyone and see if anyone has the same issues.
I was 12 yrs old when I was diagnosed with epilepsy. I had a grand mal seizure, at school no less. They put me on phenobarbital (awful drug) it is what my mom uses since she has epilepsy also. Well I would have a seizure once every year sometimes twice but it would happen out of nowhere, no auras or warnings. When I was 19 I decided to go see a neurologist and they put me on tegrital and keppra. I still had seizures but I would get this overwhelming fear before it happened. I was put on Lamictal and my last grand mal seizure was 7 years ago. I went to my neurologist last week for my yearly check up and told him that I was having a hard time remembering things; like conversations I've had, if I was told to go pick something up I would forget within a few minutes. Anyway we also started talking about this de ja vu thing I have going on. I was describing it and how you know you've done this before and you then you get real sweaty and it feels like everyone is looking at you. Your chest gets real tight and then you get this fear it's overwhelming. Then it was so weird I would be sitting there sweaty and scared and I kept thinking "this is all a dream" like my whole world wasn't real. I told my husband this and he was like that is not a normal de ja vu. Does anyone else have this happen to them?
sorry it's so long

 

[Nakamova]

Hi kisaacs98, welcome!

Deja vu episodes can be a form of a simple partial seizure -- maybe that's what's going on? How often do you have them?

Best,
Nakamova

 

[survivor]

I had my first grand mal at 11 yrs of age and i started with Eptoin (phynetion). Memory problems are common when we have these druga for such a long time. But I do not have any clue of the de ja vu and all as I never have them. I have seizure without any warning. Go, consult the neurologist and see what he says. Dear, brain is the supremo of the body and our drugs target the supremo....................... so these experiences and episodes may keep happening. All we can do is go to a good doctor and take good care of ourselves. Which vitamins and supplements do u have?
Shagun

 

[huskymom]

Welcome :hello:

I have had not had deja vu, but I get "lost" in familiar places. I can be in the house or at work, all places that I know. All of a sudden I will be standing there and feel as if I am lost, although I know where I am. I just don't know what I will see if I take a step or two. Strange, I know!! I hope that you are feeling more like yourself soon. Keep us posted

 

[Mnm8405]

I have had these deja vu feelings since I was 11 or 12, I'm all too familiar. I have been diagnosed with simple partials... they led up to my gran mal, sounds opposite of you!

 

[Aicila]

I have that deja vu. I feel like my world is about to go away. Like my sub concious mind is about to take over. My chest gets tight and it starts to get painful. Sometimes my siezures turn into a complex partial and I lose time from that point. But thats what happens to me.