Hi i am Tiara. i am 18 years old and have only been diagnosed for a year. i have had a hard time dealing with this. the first time that my family and i know i had one was when i was up camping. it took over an hour to wake me up. and that was with an oxygen mask on. my seizures come in pairs of two. after my fun trip to the hospital i slept for the next two days.
when i got home we went to see a nuerologist that didnt tell us anything. he put me on three different medicines in less than a month. he didnt listen or care about anything i had to say. i got extremely sick off two of them the onlyone i have been able to stay on for more than three months is keppra.
i then gave up on him because we werent getting any results. i was having two to six seizures a week. i then went to see the third ranked neurologist. he had me go in for my second and third eeg and in my last eeg i had a seizure and through more research we found out that there is an abnormality on my brain. my neurologist thinks its like a birth mark. this is causing seizures up and down my left side only.
having these seizures to me has stolen my senior year. i lost last summer not being able to drive and quitting my job. but now having friends look at me diferently and making fun of me. along with this i have been very sick and out for over a month of school. my neurologist thinks i have been having seizures in my stomach. i am slowly getting use to my new life and dragging my boyfriend and family with me. im not sure what to do. i have put everyone i love into stress and anger.
when i got home we went to see a nuerologist that didnt tell us anything. he put me on three different medicines in less than a month. he didnt listen or care about anything i had to say. i got extremely sick off two of them the onlyone i have been able to stay on for more than three months is keppra.
i then gave up on him because we werent getting any results. i was having two to six seizures a week. i then went to see the third ranked neurologist. he had me go in for my second and third eeg and in my last eeg i had a seizure and through more research we found out that there is an abnormality on my brain. my neurologist thinks its like a birth mark. this is causing seizures up and down my left side only.
having these seizures to me has stolen my senior year. i lost last summer not being able to drive and quitting my job. but now having friends look at me diferently and making fun of me. along with this i have been very sick and out for over a month of school. my neurologist thinks i have been having seizures in my stomach. i am slowly getting use to my new life and dragging my boyfriend and family with me. im not sure what to do. i have put everyone i love into stress and anger.
The thing is, to try to stay positive. I'm 36, having my first seizure at the age of 4. Today, I have a master's degree, driver's license, and wonderful husband. Yes, it's depressing at times, especially when you're a teen and it seems like you're the only person with this particular problem. I remember. But you've got to do your best to keep your chin up. Life is so short. When I was growing up, my mom kind of hovered over me, and wouldn't let me do anything that would over exert me. That included swimming. The only time I could swim was if my much younger brother went with me. I remember feeling guilty when I woke up from a seizure and saw the fear and anxiety in my mom's eyes. I remember kids at school being stupid and mean and making jokes about me. You know what? (Some teens are like that. And unfortunately this is when you're going to find out who your friends really are. ) But I decided a long time ago that I was not my epilepsy. I was me. With all the strengths and imperfections that I have. And I decided, that I was not going to let this one thing keep me down. I was going to go and be everything that I was meant to be. Get a neurologist that will listen to you and take the time to answer your questions. After all, it's your brain and your life. If they prescribe meds, ask about side effects. Ask whether or not it's safe to get pregnant on. You may not want kids now, but you may in the future. Be kind to yourself. Take care of yourself, physically, mentally, and emotionally. Talk to your parents about the seizures. It probably scares them more than it does you. And sometimes, just talking about it can help ease their fears. You can always tell them to come to this site. 
(I don't usually have tonic-clonic seizures...mostly, I have complex partial) Most of my friends are afraid to do anything with me without an adult being within 5 feet away, and most of my doctors were told me that I was faking seizures for attention because for a while they couldn't find anything on the EEGs...