Tomwilliam
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Hi all,
My name is Tom and I live in Belgium.
I've had primary generalised epilepsy since I was 16, but used to have seizures about once every couple of years and to be quite honest, I didn't think it too much of a pain. Sure, I'd beat myself up pretty badly when it did happen, but it was infrequent enough for me to forget about in the meantime.
Recently though, I've started to have them more frequently (still not anywhere near as often as some sufferers) but more like every couple of months. I decided to get fit the other day and set out for a run on 1st Jan...ended up in ER with multiple injuries and my children were really scared.
The point is...as I get older I am expecting to find out more about this illness, to get a grip on what I can and can't do and to try to avoid seizures altogether. As it happens, I'm wondering whether my medication even does anything (1000mg Depakine a day) as I used to have fewer seizures when at university drinking, forgetting tablets, not sleeping much.
This is just venting frustration as much as anything, I know you guys can't solve this, but for the first time ever I feel the need to talk to someone about this.
Thanks for listening
Tom
My name is Tom and I live in Belgium.
I've had primary generalised epilepsy since I was 16, but used to have seizures about once every couple of years and to be quite honest, I didn't think it too much of a pain. Sure, I'd beat myself up pretty badly when it did happen, but it was infrequent enough for me to forget about in the meantime.
Recently though, I've started to have them more frequently (still not anywhere near as often as some sufferers) but more like every couple of months. I decided to get fit the other day and set out for a run on 1st Jan...ended up in ER with multiple injuries and my children were really scared.
The point is...as I get older I am expecting to find out more about this illness, to get a grip on what I can and can't do and to try to avoid seizures altogether. As it happens, I'm wondering whether my medication even does anything (1000mg Depakine a day) as I used to have fewer seizures when at university drinking, forgetting tablets, not sleeping much.
This is just venting frustration as much as anything, I know you guys can't solve this, but for the first time ever I feel the need to talk to someone about this.
Thanks for listening
Tom