Hi all!
I am so glad I stumbled across this board tonight as I hope some of you can enlighten me.My mother has epilepsy and I have so many questions I need to ask of you - if you dont mind helping me out.I just dont know any more if it is just epilepsy that we are dealing with here,if it is then terrific.I keep telling her that it is great that this is all her problem is and that she doesnt have a terminal illness or anything.Afterall, she should be able to control her own life and not let this problem control her...am I right here or am I just an unsympathetic daughter.
I have taken her to see a specialist in Dublin , she attends our gp along with attending our local hospital.Epilepsy controls her life and ours.My younger sister criesd if I go to leave the house for fear my mother will have a seizure.She doesnt have them every day- but for some reason Sunday seems to be a very usual day for her to have one.We wonder if it is because the kitchen is warm?Or because she is stressed cooking dinner?But then, how stressful can cooking dinner be?Is it stressful enough to bring on a seizure ?Or a petit mal absense seizure?I dont know , I have looked stuff up online I have researched this area in medical books but I am not any wiser.
Is it possible that if somebody upsets her that she can have a seizure?Or is this just emotional blackmail?We dont know anymore.
She had a seizure three and a half weeks ago and she says her lip is still numb after it.Is this possible or is she imagining it?I questioned the specialist about thisa and he seemed to think it would go away and was not a cause for concern.
Now I am beginning to worry that she has a brain tumour combined with the epilepsy.Is this possible?I suppose it is?
Please dont think I am being negative here,I really dont mean to be, I am very worried about my mother and that is why I am writing this.But I am at my wits end I dont seem to have anybody I can ask anymore.My dad died three years ago from cancer and I am the eldest in our family.We are all so drained.Every day there is something wrong with my mother.Sometimes I feel angry with her , I just want her to enjoy life instead of being miserable all of the time.I kniw its tough having epilepsy but surely it is not the end of the world.
Like are you guys paranoid about leaving the house in case you have a "turn" as she puts it.How did you get over the embarrassment element of things?(If you felt that way as I appreciate that everybody deals with things differently)I have begged her to go to counselling but to no avail.
Does my mum sound typical of someone who has epilepsy? Or is she playing on it and wanting us to feel sorry for her all of the time and treat her like an invalid?
I dont believe she is an invalid, she is just a person who has epilepsy surely to God.
I wonder sometimes if she takes her tablets correctly- how severe would the reaction be if she didnt?Would it be enough to bring on a petit mal absence seizure or a grande mal one?
Incidentally my mum has more absence seizures than she does grand mal ones.
Absence seizures typically happen a few times a week - maybe five... grand mal do not happen every week or every month but sporadically- although she has had three in the past month.
I am sorry this is so long and I really will appreciate it if somebody can take the time to reply as I am at my wits end here.
With much admiration to all of you who continue to control your own lives despite living with this condition.
Citog[/b]
I am so glad I stumbled across this board tonight as I hope some of you can enlighten me.My mother has epilepsy and I have so many questions I need to ask of you - if you dont mind helping me out.I just dont know any more if it is just epilepsy that we are dealing with here,if it is then terrific.I keep telling her that it is great that this is all her problem is and that she doesnt have a terminal illness or anything.Afterall, she should be able to control her own life and not let this problem control her...am I right here or am I just an unsympathetic daughter.
I have taken her to see a specialist in Dublin , she attends our gp along with attending our local hospital.Epilepsy controls her life and ours.My younger sister criesd if I go to leave the house for fear my mother will have a seizure.She doesnt have them every day- but for some reason Sunday seems to be a very usual day for her to have one.We wonder if it is because the kitchen is warm?Or because she is stressed cooking dinner?But then, how stressful can cooking dinner be?Is it stressful enough to bring on a seizure ?Or a petit mal absense seizure?I dont know , I have looked stuff up online I have researched this area in medical books but I am not any wiser.
Is it possible that if somebody upsets her that she can have a seizure?Or is this just emotional blackmail?We dont know anymore.
She had a seizure three and a half weeks ago and she says her lip is still numb after it.Is this possible or is she imagining it?I questioned the specialist about thisa and he seemed to think it would go away and was not a cause for concern.
Now I am beginning to worry that she has a brain tumour combined with the epilepsy.Is this possible?I suppose it is?
Please dont think I am being negative here,I really dont mean to be, I am very worried about my mother and that is why I am writing this.But I am at my wits end I dont seem to have anybody I can ask anymore.My dad died three years ago from cancer and I am the eldest in our family.We are all so drained.Every day there is something wrong with my mother.Sometimes I feel angry with her , I just want her to enjoy life instead of being miserable all of the time.I kniw its tough having epilepsy but surely it is not the end of the world.
Like are you guys paranoid about leaving the house in case you have a "turn" as she puts it.How did you get over the embarrassment element of things?(If you felt that way as I appreciate that everybody deals with things differently)I have begged her to go to counselling but to no avail.
Does my mum sound typical of someone who has epilepsy? Or is she playing on it and wanting us to feel sorry for her all of the time and treat her like an invalid?
I dont believe she is an invalid, she is just a person who has epilepsy surely to God.
I wonder sometimes if she takes her tablets correctly- how severe would the reaction be if she didnt?Would it be enough to bring on a petit mal absence seizure or a grande mal one?
Incidentally my mum has more absence seizures than she does grand mal ones.
Absence seizures typically happen a few times a week - maybe five... grand mal do not happen every week or every month but sporadically- although she has had three in the past month.
I am sorry this is so long and I really will appreciate it if somebody can take the time to reply as I am at my wits end here.
With much admiration to all of you who continue to control your own lives despite living with this condition.
Citog[/b]