Hello from Washington.

[Janus]

Hi all. I am 42 and had a motorcycle accident in 1986 that put me in a coma and left part of my skull cracked open which led me to continue getting spinal meningitis repeatedly for a number of years and several more comas. I had petite-mal seizures regularly for 10 years before I knew what they were. I discovered a diet connection over time and found a strict lecithin ban helped but a few years ago I started having grand-mals and had to seek pharmaceutical aid. I have also struggled with a serious, clinical depression problem that has to be treated with meds. I do not drink or use any drugs and do use vitamins/herbs/supplements (and have for the last 18 years). I now take KeppraXR 1250 mg. daily, that was increased from 500 mg before a couple car accidents. I was able to complete my bachelors at the University of Washington before Keppra. The seizures have abated but I am very concerned about the diminishing mental acuity. I do not work for money. My life is filled with social activities, volunteer work, ART making, and home ownership. I spend lots of time reading and researching literature, art, and health. This web site came up in my search today and I am very excited to meet you. I must say that it started with a search for seizures with Lecithin as I a in great terror of health loss from nutrient deficiency. My goal is to learn all that I can about brain health and share notes with others who may understand. Thanks, Douglas

 

[stacey]

Hi Janus

im new here too and i have found everyone here to be very helpful and supportive.

You are surrounded by friends and people who know what you are going through so that will be a relief for you!!

I have epilepsy and so do both my boys they are 2.5 and 5 years old and they have whats called tuberose sclerosis complex so i havent personally been in your postion with the surgery and i congratulate you for reaching out to get more information.

I wish you all the best and welcome!!

Stacey

 

[Nakamova]

Hi Dougkas, welcome to CWE!

Many of us have been on similar journeys -- searching for dietary cures that don't bring with them side effects associated with traditional meds. Do you take a B6 supplement? It can sometimes help with some of the keppra side effects.

Another treatment route to consider would be neurofeedback. It might allow you to at least reduce your keppra dosage, and might help with the depression as well. More info here: http://www.coping-with-epilepsy.com/forums/f22/eeg-neurofeedback-501/

Best,
Nakamova

 

[jyearta]

HI Janus,,

Welcome to CWE.

My seizures are not yours, but I did want to tell you that this forum has help more than I begin to tell you.
Look into all the forums maybe there will be inform. to help you.
Do you keep a dairy? This is one of many things I,ve learn here that has helped me and my Neur.