My name is Karen, my son had meningitis a year ago, my husband and I left to go to work and he usually gets up and leaves for work or school but apparently he was sick and started having seizures, so he layed on the floor all day and had asperated, my husband found him at 5pm unresponsive, when he arrived at the ER he had a status seizure, it was over 20 minutes, they put him in a coma, and after 4 days told us that he was brain dead and would never wake up. Well thank God he did that very same afternoon, and he gradually began coming around, they took him off life support, he had a small seizure after an EEG but has been on 2000mg Keppra XR since then and has not had one at all, I have noticed at night when he is sleeping he jerks which he never did before, my son by the way is 20 years old and the Keppra has changed him, he is moody and has a terrible temper which he never had before, I think some of it is aggrivation of not being able to do the things he had planned on before he was sick. Since it had been a year he wanted to taper off of his med all together, so the doctor did an EEG and now says he has frontal epilepsy, I am devastated, I know it could be far worse and I am so grateful to still have him, I have just watched him struggle so much and I just hate it for him. Now the doctor wants to switch him to Lamictal because he said it would make him feel better, apparently younger males have a harder time with Keppra because they have so much testosterone which causes the rage, Lamictal sounds better but I am terrified about the rash, I am also scared that Robert will have more seizures, I know a lot of you have a lot worse.... I have been reading the forum since last year, its just so scary, he is driving to work and school, there just seems like so many things could happen, I'm sorry I am freaked out right now, I just have horrible thoughts about him being in that coma and I am afraid if he has a seizure it will go back to that. I hope someone can advise me on the Lamictal, he seems to be coping better with the Keppra since he's been on it a year but you never know when the mood is coming, the doctor said he would have a better quality of life, maybe someone could guide me on this?
Thanks so much in advance!!
Thanks so much in advance!!