Hello, I am very new to all this

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So sorry - and here is a suggestion:

So sorry you had a bad experience, but I
am wondering if you have a bad history of
allergies? If so, your Doctor should know
about them - even if they are not medically
related. Believe it or not, I am allergic to
raw aluminum metal! I have to wear long
sleeves and gloves and be well protected,
and often look like I am a body shop man
that is about to spray paint a vehicle!

So I do have "outside" odd allergies other
than common allergies.

========================

I do break out red welts (no blisters) or crack and
bleed from the glue and electrodes, but I had been
been told to use Tea Tree Oil or Conditioner and it
has been working wonders since, but be very careful
with it around your eyes, I usually stick to Neosporin
around the eyes because if you get it in your eyes,
it won't hurt you. I've had numerous stys before and
had to use Neosporin constantly to treat it.

Tea Tree Oil or Conditioner - is costly, but a little bit
goes a long, long ways and it pays off for itself!
 
Complex/partial? me too! I have had them for 31 years!!! i had brain surgery 18 years ago at the NIH in Maryland. I am now on 3 medications to control my seizures, and am foggy as ever. Not sure if it has to do with my age, or the toxicity of my meds. Do yourself a favor. Find an epileptologist! I am still searching, but found out that neurologists only prescribe meds. They really do not understand and are not educated in epilepsy. Good Luck!!!
 
Do yourself a favor and find an epileptologist. After 31 years, brain surgery, and every drug ever prescribed for epilepsy/seizure disorder,OCD, depression, recurrent thinking, etc. I understand that this is the only specialist who truly understands your "condition". I am still looking for one closest to home, so if you know of one in Fla. near WPB or Boca Raton, please share. I wish you luck!

Stacey
 
Last edited by a moderator:
Hi and Welcome!

I'm a fellow migraine sufferer, complex-partial "epileptic", with periodic sleep-paralysis! What are the odds??? :ponder: ;)

I put epileptic in parenthesis because I hate that term...but it was useful in my intro. sentence! :agree:

Oddly enough, we are about the same age too!

Anyway, I hope the EEG data gives you some answers, and I'm so glad you spoke up about the pain...good grief! So sorry that was such a nightmare for you. :paperbag:

Take care. Keep us posted. -Julie :)
 
Aloha Sarah- You are not the only one with sensitive skin, I too had the same problem with the glue...it does go away (that's the good news). I have had two stays at the hospital for testing, one was for five days and the other was for seven. It was not fun and I was bored to death, not to mention that whole sleep deprived thing...ugh!! After the whole hospital thing and the following mri's and pet scans, and every other new toy my neuro wanted to try out, I finally got 'proof' that this is my brain and not 'in my head' if ya know what I mean. You have definately landed in a good place to help you thru all this- I only wished I had found this site years ago. The info is top notch and the folks here are terrific...:e::mrt:
 
You're message to Sarah came to me. You may be able to forward it to her address now. Good luck with your hurdles!

Stacey
 
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