Hello, I am vorpalsword60

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vorpalsword60

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I had a left temporal concussion, untreated, at 5 y/o, not long after, occasional classic temporal auras, with increasing incidence as I aged. Without understanding the cause, as a child, I did not know that this did not happen to other children, but in later childhood I learned not to discuss it with other children because it made me different, as a teenager I thought I was "special" and kept it to myself, later helping my sister-in-law with her medical school studies, began to understand. Working as an ambulance EMT, I understood the symptoms, but I thought they were seldom and mild enough to ignore. I my late 40's, due to DAILY, protracted episodes of aura symptoms, I finally got myself treated by a neurologist. I have never had grand-mal that I know of. I am diagnosed as having an "uncomplicated temporal seizure disorder" and am currently taking Keppra 500mg BID. My auras tend to happen, of course, at times of stress, or right after, and that period between actively thinking and sleep; is that common?
 
Hi, vorpalsword60,

Welcome to the forum!

It is fairly common to have seizures when transitioning between waking and sleep, and also between stages of sleep. It's one of the reasons that the doctors do "sleep deprived" eeg's. They are more likely to catch a seizure.

Stress is also a common siezure trigger. It is for me. Others will chime in here, too.

I'm so sorry you had to endure so many years of seizures before getting a diagnosis. It was the same story with me. I waited until it was so bad I HAD to get help. The power of denial that anything is wrong is very strong.

How are you doing on the Keppra? How long have you been taking it?
 
It must be common that we as children think that this is normal, because we don't know any different. Then as we get older we just think that was weird! I waited too until my 40's, and til I could barley function to seek help, but then could not find a doctor to help me! I am happy the keppra seems to be working.
 
Hi vorpalsword60, welcome to CWE!

Something tells me you're a fan of the Jabberwock...

As Endless says, many seizures occur in the gray area between waking and sleep. That's when theta brainwaves show up -- they're slow brainwaves associated with many kinds of seizures.

It's good that you finally saw a neurologist. Uncontrolled seizures can progress in terms of frequency duration and kind of symptoms. I hope the Keppra is treating you well.

Best,
Nakamova
 
Welcome, I hope your medic. works.

I hope you find the forum to be helpful. I have leaned so much in the short time that I have been here.


Epilepsy/Seizures can be scary and leaving you feeling all alone. This forum is great in that you will not fell along.
 
vorpalsword60

hello. This is a comfortable place to be when learning how to manage life with E. Welcome! Hope you get some good info., and make some friends.:bigsmile:
 
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