Hello my name is Cheyenne!

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Chy Girl

Chy Girl

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I have absence seizures, the dr. I had said I wasn't having them and said we never brought it up be4 even though my aunt did every time I had 1 and the dr. blow it off,its been about 2 years! We swiched to an other dr. he said he wouldn't stop testing but after 1 test he gave up! Last week I went to the local ER and the dr. said it was an absent seizure. The next day I went in agin and the emergencey meds they gave me I was elergic 2 and went coo coo.
 
Hi Cheyenne, welcome to the forum. :hello:

My wife used to have multiple, daily absence seizures. She would get them especially any time that she got excited or anxious. She hasn't had any in over a decade now since she used EEG neurofeedback the first time.
 
Hi Cheyenne, and welcome to the forum!

It sounds like some of your docs aren't familiar with absence seizures. I recommend that you keep a journal of when you have your seizures, how long they last, what happens in them, etc., to show your doctor. There may be other meds out there that might control the seizures, but you need to see a neurologist who can help. In the meantime, do you have a sense of what your seizure triggers are and how you might avoid them? Another thing a journal is good for is keeping track of things like diet, sleep, activity, hormones, overall health -- and then seeing if there's a link that might indicate a seizure trigger that you can learn to avoid. A number of folks on this site have been able to control or reduce their seizures using diets such as the MAD diet and gluten free. You can search on this site for those to get more information.

Best,
Nakamova
 
As of right now we have no idea what her triggers are, were still real new to all this. But I am looking in2 diet and all other alternative treatments. My cousin has a cousin who's a herbalist so she's going to talk to her for us also!!
 
Nutrition has made the biggest improvement in my daughters seizure disorder. She also has done neurofeedback, but that needs the support of good nutrition, so I put more emphasis on the food choices.

We have been given many different diagnosis' which makes me realize that the doctors just truly don't have a clue. They have a general idea, but none of them are looking for the the cause.
 
Look at the chart linked in my signature. It lists several diets that were clinically studied for seizure control.
 
Hi, hello

and how do you do, Cheyenne? I hope you're finding your comfort zone here at CWE. You'll learn quite a bit here, and ake quite a few friends, too, during your stay here.

Be sure to check out the different diets, and neurofeedback, too.

Take care.

Meetz
:rock:
 
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