Hi, Im new to the site. I have recently had 4 seizures. I have had myloconic jerks for some time but atributed them to the disease I have which is full body RSD. I was treated in a clinical trial in Germany by being put in a coma. Things did not go well- it was to be for 5 days but I developed pnemonia and almost died. I was intubated for 35 days.
I belivie I have been conscious through most of the seizures I have had. they are accompained by terrifying "dreams" of being hurt. But its like my head is in a vice and my upper body is shuddering. I am waiting for it to pass but am aware but cant move or stop it, That one felt like 5 minutes but could have been 30-45 seconds. The next one involved a fall and was in the morning- same type. I was out for about a half hour I belivie- I hit my head on the bathroom floor aNd didnt knwo where i was... My sister found me.
The next one was why I was waking up- very violent and scary felt like i was fighting for my life- like demons were trying to keep me from waking up. I realize this all sounds weird but this is what has been going on. Im terrified. I didnt mention the constant headachs 24/7. Very intense and vertigo. I have had a cat scan last monday- it was negative. Now I am scheduled for a mri and an eeg? Just trying to find out what in the world is going on? If you have any thoughts Id be interested in hearing them. I am on many meds for my RSD including some seizure medicne by coincidence- but it is not stopping them. thanks for any thoughts sincerely, CZ
I belivie I have been conscious through most of the seizures I have had. they are accompained by terrifying "dreams" of being hurt. But its like my head is in a vice and my upper body is shuddering. I am waiting for it to pass but am aware but cant move or stop it, That one felt like 5 minutes but could have been 30-45 seconds. The next one involved a fall and was in the morning- same type. I was out for about a half hour I belivie- I hit my head on the bathroom floor aNd didnt knwo where i was... My sister found me.
The next one was why I was waking up- very violent and scary felt like i was fighting for my life- like demons were trying to keep me from waking up. I realize this all sounds weird but this is what has been going on. Im terrified. I didnt mention the constant headachs 24/7. Very intense and vertigo. I have had a cat scan last monday- it was negative. Now I am scheduled for a mri and an eeg? Just trying to find out what in the world is going on? If you have any thoughts Id be interested in hearing them. I am on many meds for my RSD including some seizure medicne by coincidence- but it is not stopping them. thanks for any thoughts sincerely, CZ