So I was recently diagnosed with TLE and in between making jokes about being able to smell awful things, mainly burning, I'm actually struggling to cope. Even just posting this I can feel my eyes welling up.
I've had simple seizures since I was 16 and now at 23 I finally have my diagnosis. I had a serious secondary generalised seizure that last over 6 minutes, temporarily lost my ability to speak properly and understand words. When I could speak I was saying all kinds of silly things like "I'm going to make a cup of kettle". I'd know there was something wrong with the sentence but not know what! I'm not sure what this diagnosis means. I feel very misunderstood by my family, especially my boyfriend who tells me to stop feeling sorry for myself. Some of friends seem to like the drama behind it too much, constantly fussing and telling everyone that will listen.
I've been taking tetregol and since then my mood has gone down. I'm in 200mg at the moment, will increase to 300 mg next week and then 400 in two or three weeks time.
My name is Tia!! Thank you for reading.
I've had simple seizures since I was 16 and now at 23 I finally have my diagnosis. I had a serious secondary generalised seizure that last over 6 minutes, temporarily lost my ability to speak properly and understand words. When I could speak I was saying all kinds of silly things like "I'm going to make a cup of kettle". I'd know there was something wrong with the sentence but not know what! I'm not sure what this diagnosis means. I feel very misunderstood by my family, especially my boyfriend who tells me to stop feeling sorry for myself. Some of friends seem to like the drama behind it too much, constantly fussing and telling everyone that will listen.
I've been taking tetregol and since then my mood has gone down. I'm in 200mg at the moment, will increase to 300 mg next week and then 400 in two or three weeks time.
My name is Tia!! Thank you for reading.