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Humph, that's awful, sorry to hear about your troubles (and the others who have posted here). I don't have any good advice, but just wanted to say I'm sorry it has taken so long for you to actually speak with a competent doctor. I hope talking about it has helped though. Sometimes expression can help a lot...a stress release.
Best of luck!
 
lzwtsn said:
Humph, that's awful, sorry to hear about your troubles (and the others who have posted here). I don't have any good advice, but just wanted to say I'm sorry it has taken so long for you to actually speak with a competent doctor. I hope talking about it has helped though. Sometimes expression can help a lot...a stress release.
Best of luck!
Click to expand...

Thanks! It's definitely been a rough couple of weeks juggling work, school, and doctors appointments.. without being able to drive. Blah!

Neurologist appointment is tomorrow. I'm not sure how these things go, but does a single appointment with a neurologist rule out something like E? I get the feeling after reading, syncope/seizures/unconsciousness is often difficult to diagnose and HATE that I don't know what's going on.

On a lighter note, I haven't had any strange feelings for over a week :)
 
well that's great! not knowing what is going on is THE WORST! i'm dealing with that right now too, and i had one appointment with a new doc Friday and he actually had some solutions for me, so hopefully your neuro will be able to do the same! i forgot from the previous posts, but have you had an mri yet? i'd be interested to hear what the results were.
Also, how bizarre but extraordinarily helpful that all of us can talk about these deeply personal issues without even knowing the people on the other end. There are people in my life that I've known for years and they don't even know I have epilepsy, but here we are online discussing these deeply private issues with complete strangers. Pretty incredible. Anyways, good luck with your appointment and I have my fingers crossed for a productive meeting!
Best,

L.W.
 
lzwtsn said:
well that's great! not knowing what is going on is THE WORST! i'm dealing with that right now too, and i had one appointment with a new doc Friday and he actually had some solutions for me, so hopefully your neuro will be able to do the same! i forgot from the previous posts, but have you had an mri yet? i'd be interested to hear what the results were.
Also, how bizarre but extraordinarily helpful that all of us can talk about these deeply personal issues without even knowing the people on the other end. There are people in my life that I've known for years and they don't even know I have epilepsy, but here we are online discussing these deeply private issues with complete strangers. Pretty incredible. Anyways, good luck with your appointment and I have my fingers crossed for a productive meeting!
Best,

L.W.
Click to expand...

I definitely hear you on that and thank you, I wish the same for you. It's definitely comforting to be able to speak to people who are in similar situations and I find it easier to talk about it due to the anonymity of it.

I recently got a CT scan and that came back fine, no bleeds, etc, but I'm not familiar with the technology, is there a difference in what tissues are targeted in a CT scan and MRI? My doctor wrote on the back of a prescription to get an "MRR" of the brain, but I haven't the faintest clue what an MRR is.
 
Ooo that's good! I have no idea what the difference is to be honest, nor what an MRR is...I'll have to google it up. I have my first MRI a week from tomorrow, so I guess I'll find out then.
 
Okay, I went for the consultation with the neurologist. I described to her what's been happening and she thinks they're complex-partial seizures.

She prescribed me Trileptal and to start taking it after I get my EEG. Titrated, 1/2 tablet twice daily for 5 days, then increase to 1 tablet bid.

Is it typical for a neurologist to prescribe epilepsy medication without any tests done? Also, if anyone is taking this medication. I would really like to hear how you guys have responded to it. I really thought it was vasovagal syncope. Blah..
 
the 1st. Neur. I saw back in 1971 did presc. me meds. at 1st visit. She did order test and they confirm what she said at my visit.

I was put on the meds. you listed by I was not able to take them.
I haven't had luck with any meds. except Dilantin and Clonazepam.
 
That's an interesting point.. I never thought of that... I was put straight on keppra when I was taken to hospital and that was before they did any tests.. In fact, I'd been in the stuff for about two weeks before they did the EEG. I wonder how much that affected the result? Hmm. Good luck with all the testing. Let us know how it goes! :banana:
 
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