So glad I found this Forum to gain information and talk and share experiences. I am from Ohio and had seizures at age of 2yrs. old. I have Gray matter heterotopia. My therapy is equine horse back riding. Just wanted to say Hi to everyone. Carol Workman. Canfield Ohio
Hello
- Thread starter libann
- Start date
Welcome to the Coping With Epilepsy Forums
Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.
Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!
jemsister
New
- Messages
- 455
- Reaction score
- 0
- Points
- 0
Welcome! I'm curious to hear about the horseback riding therapy as well. =) I'm pretty much on medication/basic lifestyle change therapy. I don't work, I homeschool to keep my schedule flexible, and I keep things really low-key around here.
I'm Josie, I live in the PNW. I've had simple and complex partial seizures for the last 15 years. The only thing they know about mine is that one of my Temporal Lobes is malformed. Other people in my family have/had epilepsy as well. Right now I am taking Trileptal, Lamictal, Dilantin, and Vimpat, with the long term plan of removing the Dilantin and Trileptal. Trileptal worked great for me for the last 8 years, but has depleted my sodium too aggressively in the last two to continue taking it.
I'm not familiar with gray matter heterotopia, I'm going to google that and expand my horizon.
I'm Josie, I live in the PNW. I've had simple and complex partial seizures for the last 15 years. The only thing they know about mine is that one of my Temporal Lobes is malformed. Other people in my family have/had epilepsy as well. Right now I am taking Trileptal, Lamictal, Dilantin, and Vimpat, with the long term plan of removing the Dilantin and Trileptal. Trileptal worked great for me for the last 8 years, but has depleted my sodium too aggressively in the last two to continue taking it.
I'm not familiar with gray matter heterotopia, I'm going to google that and expand my horizon.