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Annicus

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So I had my first seizure two days ago. Trying to cope with all the changes, worst part is the fact my wife doesn't wanna have sex in case it sets me off.

Oi vei, please tell me some good news....


Anyway hi.
 
The good news is that you can use our wives/husbands to convince her to hold on for the ride.

Welcome to the party. You can learn a lot from the folks here. The changes will be tough, but manageable. Feel free to talk, ask questions, vent, or whatever.

Hi. :)
 
welcome :)
yep talk, ask, vent, cry, anything you need to do. or just have fun and come on for the comedy section, lotsa good stuff.

re: your wife, that is purely out of love, respect, and mainly being scared shitless b/c this just happened to you. being patient with each other is key as there are so many unknowns, but, that can be used as an advantage too. have you talked to her about it yet?
it's a thing where the shock of having a seizure is overwhelming enough, when other things change around us it can be too much. a real advantage to not knowing your triggers and trying sex is seeing if it is :) if not, great, if it is, then you got something to move forward with from a neurological standpoint.
doesn't mean anything's wrong with having sex, it will just take a bit more TLC and knowledge about what's best/worst and what's okay.
if you can, tell her gently that you understand her new feelings, but at a time like this, not being able to be close to her in ways you need is too painful amidst all these new changes. understanding each other is vital, and many of us here will tell ya it's a real vantage point in a relationship... they either stick with you through EVERYTHING you need b/c in essence this is happening to you, or, they fade away and you learn something you may not have for years. more often than not one realizes their person is their rock, and then no issues really matter, they'll do it all and then some right alongside you.

are docs looking at diagnosis or what's the plan, meds or...?
 
I'm on kabbra, I probably butchered the spelling lol. I also have ptsd from a head injury 4 years ago. It's just one more thing to deal with. I'm a frequent visitor to other forums so I'll be here often. I think that everything will be ok with my wife I gotta stay positive right? Lol I'm just glad I'm here alive still.
 
keppra? haha no worries on the spelling.
interesting re: the ptsd. i was mis-diagnosed with it for nine years before having two grand mals and them realizing it was e all along. good times. you on zoloft? for me it did actually lessen the seizures but not enough to count. it simply elevated my mood and as stress is my main sz cause they lowered b/c of the less stress. went off it years later and boom!
and you're so smart, such a good way to start out feeling you 'gotta stay positive'... best way to be (and not an easy one) at the beginning, good on ya dude.
and yes....... we're all happy to be alive, be here. i love your attitude :)
 
I'm not a dude actually, I'm a female. I'm not on Zoloft currently, I am on keppra and have my medical marijuana card as well. I'm still getting used to the tired feeling the keppra is making me feel. Nice to meet you folks :)
 
ahhh sorry ;) right on!
so not taking anything for ptsd that's prob for the best as ur now on seizure meds.
on here you'll find many debates about keppra, there is a ton of info as well as opinion, one of the most talked about epilepsy drugs there is.
being tired is one of the tolerable side effects, so all the best for seizure control with it.
 
Hi Annicus, welcome to CWE!

Congrats for finding this site. (I wish I'd found CWE right after my first seizure). I know it can be pretty overwhelming when seizures first hit. It may take some time for you and your wife to get your bearings. Gathering information can help. Keep asking questions -- CWE members are a great resource for anecdotal advice and empathy. And feel free to explore the different forums here. A good place to start is http://www.coping-with-epilepsy.com/forums/f22/proactive-prescription-epilepsy-1254/

Best,
Nakamova
 
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