hello...

[droolmonster]

So, hello. I've had epilepsy for a while and I found this site today. It really hurts me to have this problem, although I try to pretend that it doesn't bother me. I have gone through many trials and tribulations as a result of the dreaded disease. Then there's the fact that everything else in my life is terrible too. I started having seizures at puberty, which isn't a fun time anyway. Then my bro decided to jump off a balcony and die, making my mom go mental institution insane. On the bright side my family loves and cares for me, including my crazy mommy, and I get good grades in college and have a boyfriend and whatnot. I hate having seizures, there's all this pressure, and then there's that to just make things so much worse. They happen a lot too. My mom says I'm lucky because I have natural electro-shock therapy. I think that's funny and depressing at the same time. She could be right. I don't worry about much when I have amnesia.

 

[BuckeyeFan]

:cheers:

Welcome to our house. Much of life sucks, but other times it can be great such as boyfriends, good grades, and a family taking care of you. Stay focused on those positives and you'll do fine.

I hope you enjoy this site. There are a lot of good people here and a ton of information.

:cheers:

 

[hawke86]

That's true BuckeyeFan. Much of life does suck.

 

[hawke86]

BuckeyeFan,
When I said Much of life does suck. I'm talking about my life. I hope what I said doesn't offend or make anyone mad.

 

[RobinN]

Thank you for making that clear Hawke

DroolMonster - WELCOME
your SN sounds like a sesame street character. Wouldnt' that be cool if they taught kids on that show about seizures.

My daughters seizures began at the age of 14 and she is 17 now. We have been able to control hers with nutritional changes, vitamin and mineral supplements that support brain and body health, neurofeedback and bio-identical progesterone.

Lately we have found that her seizures could be linked to hypoglycemia. This I am learning is quite common, but missed by many doctors. It also can cause amnesia, which my daughter has had as well. The regular blood tests did not show this problem. It was from my tracking her seizures and realizing that there was a connection. One time the EMTs said her blood sugar was at 30. So then I begged the doctor for the extended test. It went down to 50, so they need to find us help. Of course we have had to wait for 2 months to get a referral.

My daughter is so much better off meds than she ever was on them.

 

[BoudicaWV]

Dear Droolmonster,
Sorry to hear about your life but just to let u know there are people with u and not neccisarly in the same boat but just to let u in a little. My brother who was perfectly healthy died in 1999 at the age of 19 in his sleep from a asthma attack on Valentines day, then my mother she just stopped talking to me or my father after my brothers death, dad who died just recently on June 2, 2007. I was daddy's little girl n still am do i miss him yes so so so much. Take it day by day I have lived with this disease since I was 4 hours old, yes its the most trying thing i've ever been through but I have a wonderful husband and 5 great girls. They get me through everything (and when I mean everything thats everything) if you ever need someone to talk to just email me i'll be glad to talk n help u in anyway i can if u were here I'd take you out to lunch and give u a hug to let you know YOUR NOT ALONE!!!!!! That is what this site is about support loving n caring. Just remember 1 day at a time that's how i deal with everything. Take the good things put them on a poster board n look when your feeling down it will remind you that there are positive things in your life (that's what I did) did it help yes. But I've got 1 of a kind man. He's stuck by me through everything. God Bless you n we've put you on our prayer list at church. I hope things get better, they will sweety just remember that. Hey there's days u can find me crying in the corner screaming n yelling for no reason but its ok as my husband says. If you need anything just email.
Sincerely
Kim

 

[droolmonster]

I'm really sorry. My mom stopped talking too, but began again after shock therapy. She also lost a lot of weight and her eyes were glazed over from medication. Me and my dad started calling her the zombie lady. My brother died at twenty a couple days after his birthday. This may sound corny, and being a naturally morbid person that makes me cringe, but sometimes when I feel bad I just look at something beautiful. Whatever's around that I happen to notice. I also make jokes. The fact that my mom was insane for a little while was incredibly hard on me. But I just say, Yeah, she's a zombie. She's still insane actually, but now she talks constantly, and loudly. Right now I live in one of the most beautiful places on earth I think, and my favorite part is the mountains. Ever since I was a little girl, and I come from Chi-town, which is flat as a board. Old and craggy, with trees and water, able to withstand anything, and a @#$% to bike up. Be strong.

 

[BoudicaWV]

Mountains

I live in the Blue Ridge mountains, I came from Dover, Delaware where everything is completely flat, now i'm out with my camera all the time taking pictures. My whole house is decorated in them n for some reason I think black n white photos r more beautiful. Just to let u know your not the only one who laughs at particular things, its what gets us through. Just keep hanging in there there will be a time of trial n tribulations. Remember everything you've ever laughed at n u know what sometimes I just sit n cry n laugh. Everyone looks at me like i'm crazy but I feel somewhat better after that.
Sincerely,
Kimberly