Hello!

[bdhshakes]

Hello,

I ran into your website a while ago but just never got around to signing up til now. I'm 23 and my seizures started when I was a about 2 after I got encephalitis. They stopped after I recovered from that, but then returned again when I was 14, and I've had them ever since. I think I have complex partial seizures, but i'm not really sure. My neurologist has never really said for sure what type I have. When I'm on meds, I just sort of freeze up for about 3-5 secs unable to move or speak, often dropping whatever I'm holding. Some times i'll experience a vivid hallucination during this, TV's coming to life, animals jumping out of pictures... always interesting to witness op: . Every now and then I'll have about 10-15 of these back to back, which are quite draining, but it could be worse.

Anyway, I'm really glad I found this place since I've never actually met anyone who has had epilepsy. So its been really cool to see other peoples stories.

-Brody

 

[Nakamova]

Hey Brody, welcome to the forum!

It might be worth asking your neuro exactly what kind of seizures you have. It also sounds like your meds might not be doing the job. There's info here about using diet and/or neurofeedback to help reduce seizures, so you may want to look into that. Feel free to wander around, search for info, chat, vent, and, of course, share!

Best,
Nakamova

 

[Chy Girl]

HI! People around here are really nice and very helpful! I hope you get as much help as I've been!

 

[Cinnabar]

Welcome! You've joined a great family here! For certain, we'll help you get through the days!

 

[Rae1889]

Welcome!
Hopefully you can make a home here like i did! Great people, great questions and great topics!

 

[Meetz1064]

Hi, hello

and how do you do!

Have you ever considered keeping an E journal to help you track your seizures, and any possible triggers? There are a number of things that could be possibly triggering them: sleep, food, video (TV, computer, etc), hormones and more. That's just a small sample, but perhaps keeping a journal of those things would help you AND your doctor both, and then they would be easier to control.

If you'd like, I can post a list of things to put in the E journal to help get you started. By no means do you have to put everything listed in it, but it WILL help you and your doctor, I promise.......

Welcome to CWE, by the way. I'm sure you're going to like it here. Mr B, our host, has built us an AWESOME home here. Feel free to check out all of the nooks and crannies....the Library is great as well as the Kitchen for information, and the Padded Room is great for venting when you need to, and trust me, we've all been there a time or two.

So feel free to kick up your feet, and relax. Ask questions, make friends, and just hang out. Hopefully, someone will come around with some decent coffee (I just burnt mine) or decaf if you like that instead.

Take care.

Meetz
:rock:

 

[bdhshakes]

You're right Nakamova, I really should ask my doc what kind of seizures i'm having. I never really bothered to ask him since I've always used my own terminology for them :roflmao:

Meetz, thanks for the idea on the journal! I do keep note of when I have a seizure on my calendar. But I think i'm going to try out a journal. I've never really been able to figure out what triggers my seizures, since I don't get an aura or anything like that. hopefully I'll be able to make some progress with this.

thanks guys, nice to meet you all.

-Brody

 

[skillefer]

Hi! Welcome to CWE! You said you were fine until you hit 14...by any chance, was that when you went through puberty? If so, hormone fluctuations can trigger seizures, so try to keep track of when in the month you have them.

 

[Meetz1064]

You're welcome, Brody.

I've got a good list of things to put in the journal if you want it......

 

[dfwtexas]

Welcome, this place has helped comfort me, educate me and help me to accept my seizures and move on with my life. I got diagnosed about a year and half ago and did a lot of searching to find out about E. I visit a few other sites but found it was not the warm fuzzy feeling I get when I come here. One of the ladies on here lives close by and we are planning on getting together. It is interesting that so many people from all over, all backgrounds, ages, etc and we all have such a special bond
jenn

 

[Kayleesmom]

Welcome to the group. There is alot of great support here. Hope things are going well.
Leslie G.

 

[BuckeyeFan]

Hey Brody - Welcome to our house. The more the better. This is a great place to be.

:cheers:

Nothing like a world wide network of honest heart felt support.