Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.
Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!
The more i read about this drug keppra ..saddens me for all who have sufferd the side effects ..i just want my girl back ..now that she is weaned of it ...fingers crossed ..her future will be bright ..as the sparkle in her eyes has gone since they put her on it ..Hi. Just like every AED I ever took, Keppra XR is ruining my life. I would very much prefer to have seizures. I've gone round and round about this with my neuro. I got depression, anxiety, insomnia, angry outbursts, thoughts of suicide and dying on this drug. I am sick of it. I used to be a happy person with seizures all the time. Now, I am a miserable person with fewer seizures. I am sick of the drugs. NO MORE DRUGS!
I want to wean myself off of Keppra XR as safely as possible.
I take 1500 mg in the am and 1500 mg in the pm
If I wean myself 250 mg at a time, for two weeks at a time, starting with my night time dose, will I avoid status epilepticus?
I was taken off of Keppra when told I was having psuedo seizures, no weening off just stopped! I was taking 3000mg keppra xr! I still have seizures but since nothing showed up when while being monitored in the hospital, the doctor took me off and I have not even heard from my neurologist. Not one peep from him.