Hello,
I am new to this forum and new to the epileptic community. I need some help identifying and understanding my form of epilepsy, so if anyone has some incite, it would greatly be appreciated. I have had 2 seizures so far in my life I'm 23 years old and very healthy. I've never have had problems until two years ago, after college basketball practice I went to the grocery like any other time to grab a few things before going home. I went in and I immediately got extremely light head in the store. It shot through my brain and my entire body, I became sort of tingly in the head. I put my head down and was fine I ccontinued through the store for about 40 mins leaning over the cart keeping my head down low and occasionally closing my eyes. I felt better, I then stopped to get a gallon of milk out of the freezer and we I stood up and looked into the lit up freezer I got very light headed dizzy and afraid I new something was wrong so I headed for the self check outs I wanted out of the store. After making it to the self check out I thought, maybe my blood sugars low, I did. Just have a hard practice. But I've never had a problem with blood sugar before. I stood up once again from cart to go grab a candy bar and as soon as I made it to the candy bars I remember seeing a crunch bar and then all of the colors of the rappers rushes together and formed a rainbow and I passed out and woke up in the squad. I thought I had just fainted to my surprise I was told I had seizures that I had spun around I n circles with my eyes rolled back and proceeded to have a grand mal seizures right their at the self check outs [embarrarsing
] apparently i had began to turn blue and then i was "awake" for a while but not coherent, and I don't remember any of this. I had a severe headache when I awoke the paramedics put me on oxygen which both received the headache and woke me up as I felt very lethargic. When I got to the hospital they ran all sorts of test from blood work to cat scans. Everything checked out normal besides my blood sugar was low. They gave me an IV sent me home and had me contact a neurologist. I saw the neurologist and they had me do the temporal flashing light test. And absolutely nothing showed. I then went home and basically told it was a 1 time deal. Going into stores then made me a little nervous and I never felt quite right in them, however until about a year later I was in Walmart and again at night, I was in the store for about 10 mins and the sensation hit me hard in the head again I became light headed afraid and tingly in the head. I found a chair and sat down with my eyes covered for about 15 mins. I then felt fine, so I stood up and went down the shaving Isle, mid way down the Isle, it hit me like a ton of bricks again I started to become very scared. I squared down for a bit closed my eyes and breathed and began to feel better. I got back up went down the Isle some more, and it hit me again and again was worse. I started seeing double of things and I started seeing them in flashes one min they'd be their and the next they wouldn't I remember being confused as to what was happening and then realized that this was simply my eyes rolling to the back of my head. After that I was very fearful and I got up and decided to head for the exit. Apparently I didn't make it 5 feet as I again woke up in the back of a squad arriving to the hospital . Except this time I was in pain. It felt like I had been suckered punched by Mike Tyson. This time I apparently had another grand mal and had spun around again. And then I seizured and smacked my face right on the hard concrete floor. I broke my face that night on my right cheek bone. One thing I forgot to mention is, that both times after waking up from the seizures for about 45 whole minutes my entire body was on fire, I was intensely over heating. Or at least I felt as if I were. My body temp read fine on the thermometer, how ever I was so hot in the ER I c was shedding clothing just to cool off enough. My question is does any one know what's going on with me? Doctors keep writing me off. For the last year now I have been seizure free, knock on wood. However, it's not been a cheerful easy year. I have developed intense panic attacks that shut me down from doing things, I avoid stores at all costs and if I have to go in I go k grab one thing and get out now. If any one can help I'd greatly appreciate it. I personally think the stores are what are triggering my episodes, as both tines I've seizures they've been in stores, I think maybe the lights might have something to possibly do with it. But i dont know, I'd just like to pin point what my problem so I can get better and live life
I am new to this forum and new to the epileptic community. I need some help identifying and understanding my form of epilepsy, so if anyone has some incite, it would greatly be appreciated. I have had 2 seizures so far in my life I'm 23 years old and very healthy. I've never have had problems until two years ago, after college basketball practice I went to the grocery like any other time to grab a few things before going home. I went in and I immediately got extremely light head in the store. It shot through my brain and my entire body, I became sort of tingly in the head. I put my head down and was fine I ccontinued through the store for about 40 mins leaning over the cart keeping my head down low and occasionally closing my eyes. I felt better, I then stopped to get a gallon of milk out of the freezer and we I stood up and looked into the lit up freezer I got very light headed dizzy and afraid I new something was wrong so I headed for the self check outs I wanted out of the store. After making it to the self check out I thought, maybe my blood sugars low, I did. Just have a hard practice. But I've never had a problem with blood sugar before. I stood up once again from cart to go grab a candy bar and as soon as I made it to the candy bars I remember seeing a crunch bar and then all of the colors of the rappers rushes together and formed a rainbow and I passed out and woke up in the squad. I thought I had just fainted to my surprise I was told I had seizures that I had spun around I n circles with my eyes rolled back and proceeded to have a grand mal seizures right their at the self check outs [embarrarsing
] apparently i had began to turn blue and then i was "awake" for a while but not coherent, and I don't remember any of this. I had a severe headache when I awoke the paramedics put me on oxygen which both received the headache and woke me up as I felt very lethargic. When I got to the hospital they ran all sorts of test from blood work to cat scans. Everything checked out normal besides my blood sugar was low. They gave me an IV sent me home and had me contact a neurologist. I saw the neurologist and they had me do the temporal flashing light test. And absolutely nothing showed. I then went home and basically told it was a 1 time deal. Going into stores then made me a little nervous and I never felt quite right in them, however until about a year later I was in Walmart and again at night, I was in the store for about 10 mins and the sensation hit me hard in the head again I became light headed afraid and tingly in the head. I found a chair and sat down with my eyes covered for about 15 mins. I then felt fine, so I stood up and went down the shaving Isle, mid way down the Isle, it hit me like a ton of bricks again I started to become very scared. I squared down for a bit closed my eyes and breathed and began to feel better. I got back up went down the Isle some more, and it hit me again and again was worse. I started seeing double of things and I started seeing them in flashes one min they'd be their and the next they wouldn't I remember being confused as to what was happening and then realized that this was simply my eyes rolling to the back of my head. After that I was very fearful and I got up and decided to head for the exit. Apparently I didn't make it 5 feet as I again woke up in the back of a squad arriving to the hospital . Except this time I was in pain. It felt like I had been suckered punched by Mike Tyson. This time I apparently had another grand mal and had spun around again. And then I seizured and smacked my face right on the hard concrete floor. I broke my face that night on my right cheek bone. One thing I forgot to mention is, that both times after waking up from the seizures for about 45 whole minutes my entire body was on fire, I was intensely over heating. Or at least I felt as if I were. My body temp read fine on the thermometer, how ever I was so hot in the ER I c was shedding clothing just to cool off enough. My question is does any one know what's going on with me? Doctors keep writing me off. For the last year now I have been seizure free, knock on wood. However, it's not been a cheerful easy year. I have developed intense panic attacks that shut me down from doing things, I avoid stores at all costs and if I have to go in I go k grab one thing and get out now. If any one can help I'd greatly appreciate it. I personally think the stores are what are triggering my episodes, as both tines I've seizures they've been in stores, I think maybe the lights might have something to possibly do with it. But i dont know, I'd just like to pin point what my problem so I can get better and live life
) research what relates to your exact situation, print the facts out, then make an appt with your doc and take it with you. alot of times when they see that and realize a patient is VERY serious, they step up a notch to help.
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