Help!!

[Jacque]

I am so confused with Doctors - Meds - Seizures - I am new to this forum. I had a mengionma tumor taken out about 7 years ago not problems - everthing went great. About 2 years or so I started having these strange feelings went to the ER CT scans everything looks great - sent me to a nuero more test - seizures was the diagnoses. Back & forth on the meds had me keep a diary the only time I had problems right before & during menstrual cycle. I am taking topomax and I feel so bad from the meds - is there a natural way to go about this - can someone help me?
jacque

 

[epileric]

Welcome Jacque

I can tell you you're not the only person who wishes they didn't have to take medications for seizures. There are a few alternatives used to treat epilepsy you might want to check out http://www.coping-with-epilepsy.com/index.php?p=alternative-treatments. I know it was discussed how meditation, yoga or tai chi have helped some peoples seizures. Try using the "search" option at the top of the page & see what you find.

I would never suggest you stop taking your medications in lieu of using an alternative though. I would suggest you ask your neurologist if there is another medication out there that might effect you less negatively yet still control your seizures.

 

[Nakamova]

Hi Jacque, welcome!

If your seizures are clustered at the same time of the month, you could have catamenial epilepsy -- the seizures being related to shifts in estrogen. Some people are treated for this using progesterone. You may want to ask your neurologist about this option.

Topomax can definitely have unpleasant side effects -- unfortunately all the AEDs can -- but it's possible you would fare better on a different med. Many of us have tried a few before finding one with tolerable side effects and seizure control. Definitely ask your doc about other options.

Best,
Nakamova