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Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

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Loopy Lou

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Hey my name's Louise. I was recently diagnosed with epilepsy after having two separate episodes of unconcious seizures and then was shocked to learn that there was all sorts of other symptoms which i just put down to being dozey and daydreaming and all that sort of stuff.

Anyhoo my life has changed quite a bit (Including my working life, but luckily i can't be sacked on health grounds, so at least i still have a job!) and i just wanted to meet and talk to other people with epilepsy. This is still all pretty new to me. It's strange that i've known people with epilepsy - all of which also had learning difficulties - and never seen anyone have a single seizure.

Anyhoo just saying hi! I'm going to have a good nosey about and see what the site's like, but it seems pretty friendly so far!

:rock:
 
hi louise,

welcome to the forum! this is a great place to find lots of information when your new to epilepsy and support and understanding when the need is there.
 
Thanks for your reply CeiliClare (Do i detect a wee bit of Irish there? :pfft:)

I've had a little look around and *gasp* even replied to some threads.

It's great that theres forums like this out there, as i didn't really have anyone to talk to about it. At least because of the work i do, there's always trained people around in case i do have a grand mal at work!
 
i'm new also, my son was recently diagnosed. the people here seem really nice and super eager to help! i'm a member of cafemom and tried some epilepsy groups and just like every other group on that site no one was helpful, lol.
 
Hey there Kristy.

I think i read the thread about your son. Parents will always worry, especially with something like this.

My mum and dad were so worried (I'm 23!), but also really annoyed at me for refusing help in the ambulance when they picked me up one night. They gave me a good telling off and practically dragged me to the doc's when i would much rather stick my head in the sand.

Anyhoo my point is that i really value my parents help and support, and i think your son will too.
 
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